
Hong Kong to Shut Down City Before Super Typhoon Saola Hits
Hong Kong is making preparations for a possible direct hit by Super Typhoon Saola, which is shaping up
2023-08-31 18:24

Families slam 'racist' Danish law to clear immigrant 'ghettos'
Outraged residents say they will resist a "racist" Danish law which allows large numbers of people to be evicted from social housing in areas where the authorities...
2023-10-06 13:54

All The Lifestyle & Wellbeing Products We Tried & Loved In August
At least once a week, the writers and editors on Refinery29's Life team get into a long conversation about some cool new item that's been absolutely saving or changing or elevating our lives. So we decided to share the wealth and highlight some of our favorite products each month.
2023-09-01 00:57

42 Of The Coolest & Most Affordable Amazon Home Decor Products
While you’re probably hip to how great Amazon is for purchasing inexpensive electronics and other everyday essentials, we’re not so sure you know how awesome the website’s home selection can be. Believe it or not, the site we all know and love for its cheap, well, just about everything also features a surprising assortment of affordable and design-forward home finds, too. That’s right — the next time you’re stocking up on socks or your favorite discontinued lipstick, you can just as easily throw a fab home decor find into the mix to meet that free shipping minimum.
2023-07-08 06:29

Woman in ‘living hell’ with brain slipping down her spine after ice-skating accident
A 25-year-old who has been mostly bed bound by a painful condition that is causing her brain to slip down her spine is pleading for help to raise funds for lifesaving treatment in the US to stabilise her skeleton. Desperate to raise the £200,000 she needs, Emily Balfour, from London, said she will eventually face permanent disability and is at risk of paralysis if she does not receive PICL, a procedure that injects stem cells into the spine through the back of the mouth. An ice-skating accident at the age of 14 flagged the alarming conditions that cause Emily to now live with “relentless levels of pain”. She was diagnosed with Ehlers-Danlos syndromes (EDS), a collection of rare conditions affecting the connective tissues that make her joints unstable and prone to dislocation, as well as craniocervical instability (CCI), meaning the area where her skull and spine meet is dangerously unstable. Emily also has Chiari malformation, which means the lower part of her brain has herniated and is pushing down through the top of her spinal column. “My health is continuing to deteriorate but I still haven’t managed to raise enough money to get the treatment I need in America,” Emily said. “It would be lifesaving for me and, unless I get the treatment, my life is on pause and stagnated, I’ve become largely bed bound. “And this issue doesn’t just affect me, there are so many people with this condition who are struggling to get funds for treatment abroad. Money is the barrier for us being able to live our lives.” In 2011, Emily was first diagnosed with EDS after an ice-skating accident resulted in a trip to the doctors. I want to keep my sense of agency but it’s getting more and more difficult. Emily Balfour Once a sporty and active teen, Emily is now confined to her bed most days. Due to Chiari malformation, Emily’s brain is pushing down through the top of her spinal column and she said medical specialists have informed her that some of her brain is no longer in her skull. Emily once had dreams of working in film, but she is unable to complete her degree and is also not able to work while she struggles with her health. She said: “I’m not able to participate in life, I’m unable to work and I keep having to delay the completion of my degree. “I have limited vision, I can’t see out of my left eye and I have recently dealt with limb paralysis.” Earlier this year, Emily was rushed to hospital after her left arm became paralysed and swollen. She said: “It looked like a dead person’s arm, I feared I’d never regain mobility of it. “It turned out I was struggling with blood flow to the arm, and I’ve regained limited use of my arm, but I’m high risk of it happening again. “I’ve seen people with these conditions lose function of their arms completely and that obviously concerns me because I live by myself. “I want to keep my sense of agency but it’s getting more and more difficult.” Emily said her brainstem has been damaged to the point where her body is not functioning and she suffers daily from extreme fatigue, periods of paralysis, and loss of vision. It’s incredibly frustrating and I have to accept that I can’t live the life I thought I would. Emily Balfour As a result, Emily now finds herself largely bed bound, is regularly in and out of hospital and suffers from excruciating symptoms which threaten irreversible physical disability and potentially death. Innovative treatment in the US to stabilise her skeleton will be life-changing for Emily, but it comes at a cost. She hopes to raise £200,000 for multiple stem cell treatments, medical care and accommodation in Colorado, USA, where she will undergo a procedure known as PICL to repair and strengthen the ligaments that keep her skull stable. She said: “I’m in relentless levels of pain and, the more activity I do where I’m moving my neck, the worse the pain is. “If I don’t get treatment then it’s looking likely that eventually I will lose the use of one or both of my arms. “The longer it goes on, I’m losing more and more years of my life.” Before her diagnosis, Emily had dreams of working in film, having attended the BFI Film Academy as a teen. She also had plans to travel after finishing her English degree, which is currently on hold. Emily said: “It’s incredibly frustrating and I have to accept that I can’t live the life I thought I would. “I’m seeing other people my age having fun and building their careers but until I get the PICL procedure, I’m stuck. “There are other people who are also in my situation and it’s not an easy journey but I just hope that these treatments will be easier to access closer to home so we can get back to living.” I just want to be able to complete my degree and have a normal life and not be stuck in this living hell. Emily Balfour Emily hopes more research into EDS will result in more treatment options becoming available. For Emily, she says the procedure will be a lifeline and enable her to start living again. “Getting treatment will change everything,” she said. “I wanted to write and make films, but I am now more interested in medicine and want to get a psychotherapy qualification and work in that field. “I used to be so passionate about movies and reading, but because of my brain and vision issues, I’m restricted to audiobooks now. I can’t even do basic things like watching TV, that once brought me so much joy. “I just want to be able to complete my degree and have a normal life and not be stuck in this living hell.” To donate to Emily’s fundraiser, visit: www.gofundme.com/f/urgent-treatment-for-emily. Read More Four ‘red flag’ bowel cancer symptoms that can show two years before diagnosis Mother left ‘looking like Freddy Krueger’ reveals first skin cancer warning sign Woman ‘can barely move her hands’ after years of gel nails Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live
2023-05-09 15:26

Save $100 with the best noise canceling headphones deal from Prime Day
SAVE $100: The Sony WH-1000XM4 wireless noise canceling headphones are on sale for $248 in
2023-10-10 18:18

When will 'Cooking with Just Christine' Season 3 air? Christine Brown to be joined by 'Sister Wives' co-star and BFF Janelle on TLC show
'Cooking with Just Christine' Season 3 will also star Christine Brown's family members beside her BFF Janelle
2023-08-16 14:24

South Koreans sit key exam as flights halted to limit distraction
More than half a million students in South Korea sat the crucial national university entrance exam Thursday, with authorities taking extraordinary measures, including...
2023-11-16 17:26

China Requested Japan Allow Visa Free Entry, Business Group Says
China’s government requested that both Japan and the mainland allow visa free entry to the other nation’s citizens
2023-07-06 14:20

Kourtney Kardashian reveals doctors saved her unborn baby's life in shocking Instagram post
Reality star Kourtney Kardashian has revealed she had to undergo emergency fetal surgery to save her baby’s life. In an Instagram post, the 44-year-old, who is pregnant with her and husband Travis Barker’s child, explained she was rushed to hospital where doctors were able to save her unborn baby. Barker, 47, who is the drummer for rock band Blink 182, “rushed” back from the band’s UK and Ireland tour to be by his wife’s side. Kardashian wrote: “I will be forever grateful to my incredible doctors for saving our baby’s life. “I am eternally grateful to my husband who rushed to my side from tour to be with me in the hospital and take care of me afterwards, my rock. And to my mom, thank you for holding my hand through this.” Kardashian shares three children with her former partner Scott Disick and opened up about how going from having three “really easy pregnancies” to having to undergo fetal surgery filled her with a level of “fear” she was unprepared for. She continued: “As someone who has had three really easy pregnancies in the past, I wasn’t prepared for the fear of rushing into urgent fetal surgery. “I don’t think anyone who hasn’t been through a similar situation can begin to understand that feeling of fear. “I have a whole new understanding and respect for the mamas who have had to fight for their babies while pregnant. “Praise be to God. Walking out of the hospital with my baby boy in my tummy and safe was the truest blessing.” In the comments, many offered their support to the couple after their frightening experience. “Sending you and @travisbarker all my bundles of hugs and healing,” one wrote. Another said: “Love you. So thankful everything is ok.” Sign up to our free Indy100 weekly newsletter Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.
2023-09-07 16:18

Boost your cardio with this 2-in-1 bike and rower, now 51% off
TL;DR: As of June 26, you can get the Stamina Deluxe Conversion II Recumbent Bike/Rower
2023-06-26 17:54

Enjoy unlimited premium web hosting, for life, for only $80
TL;DR: As of July 18, get a lifetime subscription to iBrave Cloud Web Hosting for
2023-07-18 17:51
You Might Like...

What Crackdown? 14% of Netflix Users Still Sign on With Shared Passwords

Bring home a refurbished MacBook Air for just $400

With dreadlocks, hipster beards, Israel reservists called to war

'Full recovery': Emirates Group unveils record $3bn profit

The Gaza Strip gets its first cat cafe, a cozy refuge from life under blockade

Bud Light Seeks Comeback From Controversy With New Campaign

Plus-size movement reshapes fashion in Brazil

New Cleaning Products Hit Shelves to Tempt Shoppers Sick of Stocking Up