
Concern over Huntington’s patients ‘turned away’ from mental health support
Many people with Huntington’s disease are being turned away from traditional mental health support, a charity has claimed as it called for more to be done to help people with the condition. Some mental health services have told patients that they do not have the specialist care needed, leading to the Huntington’s Disease Association calling for better help and support for people living with the disease. Huntington’s disease is a condition that stops parts of the brain working properly over time and can lead to problems with movement, cognition (perception, awareness, thinking, judgment) and mental health. Most people with the inherited condition will start to show symptoms between the ages of 30 and 50 and it gradually gets worse for around 10 to 25 years until the person dies. During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point Daniel Johnston There is no cure for Huntington’s disease or any way to stop it getting worse. A small new poll of 105 people with the condition, shared with the PA news agency, found that 85% had attempted to access community mental health services. But among this group, 56% claimed they had been denied access to care, the Huntington’s Disease Association said. Daniel Johnston, from Horam, East Sussex, said his local mental health service “didn’t know” where to refer him. The 41-year-old father of two said: “When I tested positive for Huntington’s, there was no specific pathway from that point for any mental health support. “I was confused, upset and angry about the diagnosis. I didn’t, and still don’t, fully understand my feelings of confusion and anger. “I wasn’t referred to a professional psychologist or anyone who knows how to support someone with a life-changing diagnosis such as Huntington’s. “During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point. “It was only when I explained to my consultant in our six-monthly appointment earlier this year the extent of my thoughts that he contacted the crisis team for me, and they began a course of daily calls for two weeks. “From this point onwards it’s been getting better, but I feel so sad for others who slip through the net so easily. “It’s as if people get afraid when you mention Huntington’s and there’s confusion around treating Huntington’s and treating mental health. “I’m not surprised by the amount of people being denied access to mental health support services due to having Huntington’s – I have been one of those people and it’s really scary.” The charity said hurdles often occur for patients after they have been referred by their GP for mental health support. Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”. The charity has launched a new campaign, Mindful of Huntington’s, to raise awareness of the cognitive impairment symptoms of the disease, and has called for greater access to mental health support. Cath Stanley, chief executive of the Huntington’s Disease Association, said: “Many people think of Huntington’s as a disease which impacts movement, but that is only half the story, and the non-physical symptoms are often overlooked. “At the Huntington’s Disease Association, we find people will most commonly be referred to mental health services due to cognitive symptoms such as irritability and aggression. “Throughout May, we will be focusing on these cognitive symptoms and the life-changing impact they can have. “The stark findings we’re announcing can’t be ignored – people are asking for much-needed mental health support, being turned away, and their health is deteriorating further. It is disappointing but not surprising to see that there’s still a lot of misunderstanding around Huntington’s.” To find out more visit: www.hda.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Scottish first minister Yousaf calls cost of coronation ‘uncomfortable’ King Charles and other royals return to work after coronation Prince Harry’s ghostwriter opens up about harassment after ‘Spare’
2023-05-09 13:51

My Religion Made Halloween a Taboo, so Celebrating It Now Is Liberating
Spooky season has always held a special place in my heart. From trick-or-treating with my siblings, to resourcefully creating costumes from my closet (Frida Kahlo, Holly Golightly, and Little Red Riding Hood, to name a few), to attending costume parties with friends, to eventually throwing my own Halloween bashes, the day has never been short of excitement.
2023-10-27 21:45

Saturn apparently has 145 moons. So eat it, Jupiter.
Jupiter briefly stole the limelight in February when new research revealed the planet had so
2023-05-13 22:22

New Zealand seizes record amount of meth in maple syrup jugs from Canada
When New Zealand police cracked open plastic jugs of maple syrup that had arrived from Canada, they found something decidedly less sweet inside.
2023-06-15 16:25

Italian waiter refuses to serve woman a cappuccino until she finishes pasta in hilarious viral TikTok
An Italian waiter has gone viral after a video of him refusing to serve a customer her cappuccino until after she finished eating her pasta was posted on social media. The clip was posted by Nadia Caterina Munno, a cook, author and influencer known as The Pasta Queen on Instagram earlier this week. It shows her and her friend Cat Sullivan dining at a restaurant in Milan, when Sullivan asked the waiter for a cappuccino while still eating her pasta. The man serving the pair appeared shocked at her request. In Italy, it is common to only drink cappuccinos before 11am, and espressos after dinner. It is also frowned upon to pair cappuccinos with pasta dishes. The waiter asked Sullivan: “With pasta? After pasta. Are you sure?” When she answered in the affirmative, he walked away and remarked: “This hurts so bad.” The clip then shows Sullivan sipping on her wine with her empty plate in front of her. The waiter then arrived to clear her plate and place her cappuccino in front of her. Sullivan thanked him, but added: “But I just finished my pasta?” “I am sorry we are slow… we made sure to delay as much as possible so you wouldn’t eat your pasta with cappuccino,” the waiter confessed with a smile, with both Sullivan and Munno bursting into laughter. Later, Munno revealed that the request was a prank on the waiter, adding: “I can’t believe that I am even involved in this prank.” She captioned the humorous video: “In Milan with my friend Cat and a traumatised waiter.” Some found the waiter’s strict adherence to Italy’s unspoken food rules hilarious, but others were less than pleased with his customer service. “I feel so uncultured right now, because I would actually be annoyed. If I’m a paying guest, give me what I want, within reason of course,” one person wrote. Another said: “The customer is always right. Mr waiter [sic] has no business telling her what not to drink with her pasta.” However, several people defended the waiter, with one person explaining: “Losing a customer is not the end of the world in Italy. The waiter’s job is to give the customer the best experience of how the chef wants his food to be experienced. “So if you don’t like it, you can leave and the world does not revolve around you.” Others chimed in with their own experiences of ordering food in Italy that is deemed outside of the norm. “My boyfriend wanted to order pasta Bolognese in Venice and the waiter denied the order,” one commenter wrote. A second shared: “I once had a very nice gelateria employee in Rome refuse to give me the first flavours I ordered because they wouldn’t go well together.” Read More I couldn’t climax, so I let ‘big testosterone’ take me for a ride John Goodman reveals he’s lost 200 pounds as he makes red carpet appearance Kelly Osbourne criticises Prince Harry for ‘whinging’ about the royal family The top 10 most satisfying food sounds have been revealed Chef says ‘don’t get hung up on authenticity – it’s unachievable’ Celebrity chef bans vegans from his restaurant
2023-06-21 16:46

I matched with a friend on a dating app. What do I do?
Dating apps can be the wild, wild west. Dodging ghosters and scammers can be exhausting.
2023-10-17 18:15

Best hotels in Hanoi 2023: Where to stay in the French Quarter, the Old Quarter and more
A chequered history has created a beautiful mess of contrasting neighbourhoods in Hanoi. There’s the labyrinthine Old Quarter; tree-studded French Quarter; lake-filled Tay Ho District; and the glistening modernity of the rapidly developing westside precincts. Meaning there is something for everyone. This fast-paced city (Vietnam’s capital) has everything from a fantastic food scene – in our Hanoi city guide, our writer recommends a banh mi sandwich as a great place to start – to plenty of green space for when the honking scooters get too much. But whether you’re here to take an eco-cruise along the Mekong River or want to visit Hanoi’s historic sites – such as the Ho Chi Minh Mausoleum, the final resting place of the man referred to as “Uncle Ho” – you’ll want the perfect hotel to rest your head. Fortunately, accommodation options are spread throughout this southeast Asia city, so, you can pair your personality with the neighbourhood. From boutique charm squeezed into the Old City, to spacious modern creations from award-winning architects, there’s an option for all tastes. The best hotels in Hanoi are: Best hotel for culture vultures: Hotel de l’Opera Hanoi MGallery Best hotel for the Old Quarter experience: The Chi Boutique Hotel Best hotel for romantic getaways: Silk Path Boutique Hotel Hanoi Best hotel for art-lovers: Apricot Hotel Best hotel for sunset cocktails: Pan Pacific Hanoi Best hotel for lake views: InterContinental West Lake Hanoi Best hotel for family getaways: Elegant Suites Westlake Best hotel for mixing business and pleasure: Lotte Hotel Hanoi Best hotel for the celebrity guestbook: Sofitel Legend Metropole Best hotel for culture vultures: Hotel de l’Opera Hanoi MGallery Neighbourhood: French Quarter As the name suggests, Hotel de l’Opera Hanoi is a stone’s throw from the Hanoi Opera House, a wedding cake structure built during the French colonial period and modelled on Paris’s Palais Garnier. This lavish hotel, with colourful rooms and a courtyard cafe, rests on Trang Tien Street, which connects the opera house with Hoan Kiem Lake. The hotel is part of the MGallery Collection, managed by Accor. An eye-catching Art Deco building across the street houses L’Espace, a French cultural centre, while the Vietnamese Women Museum is just around the corner. Best hotel for the Old Quarter experience: The Chi Boutique Hotel Neighbourhood: Old Quarter The Chi Boutique Hotel couldn’t be better placed for absorbing the cluttered atmosphere of Hanoi’s fabled Old Quarter. But despite its sardine-tin location, most rooms are refreshingly spacious, with trendy (sometimes daring) design features and chic bathrooms with bathtubs. A hip rooftop bar offering fresh angles of Hanoi’s iconic St Joseph’s Cathedral is a highlight, but The Chi’s location, just steps from some of Hanoi’s trendiest shops and restaurants, including fashion boutique Chula Fashion and artisanal restaurant TUNG, is the cherry on the cake. Best hotel for romantic getaways: Silk Path Boutique Hotel Hanoi Neighbourhood: Hoan Kiem Lake Walk out from this boutique treasure and find Hoan Kiem Lake resting right on your doorstep. Located within one of Hanoi’s characteristic “tube houses” – narrow buildings designed to allow road access for as many families as possible – rooms are typically tight, but comfortable. The hotel comes into its own on Saturday and Sunday, when the temporarily pedestrianised lake road erupts into a frenzied playground of toddlers driving miniature Ferraris and teenage dance troupes filming their next big hit. Front-facing executive rooms offer views of the lake, while solid triple glazing keeps out any noise disturbance – a necessity during weekends. Best hotel for art-lovers: Apricot Hotel Neighbourhood: Hoan Kiem Lake From the outside, Apricot Hotel may look like any other luxury city property, but drift through the entrance, ignoring the gaudy chandelier, to gaze at magnificent pieces of art that adorn a dazzling lobby. The art-loving owners have adopted the hotel to display their sought-after collection of paintings and sculptures from well-known Vietnamese artists. Bright and airy rooms, also decorated with local art pieces, serve as a calm escape from the outside bustle, while the broad rooftop swimming pool and sky bar are additional perks. Best hotel for sunset cocktails: Pan Pacific Hanoi Neighbourhood: Truc Bach If you like your sunsets dramatic and your cocktails colourful, the Pan Pacific Hanoi never fails to impress (unless it’s cloudy). The Summit is the hotel’s pride and joy; a west-facing sky bar offering spellbinding views over the twin lakes of West Lake and Truc Bach, elegantly partitioned by tree-lined Thanh Nien Street and Tran Quoc Pagoda. This is Hanoi’s best view, so it’s worth making the trip to The Summit even if you’re not staying in the hotel. If you do decide to stay, you’ll encounter near-equivalent views from the tasteful rooms. The hotel is also situated in Truc Bach, one of Hanoi’s most charming lakeside neighbourhoods, and perfect for a morning stroll. Best hotel for lake views: InterContinental West Lake Hanoi Neighbourhood: West Lake Swap a cacophony of motorbike horns for the soothing sounds of lapping water at InterContinental West Lake Hanoi. The “over-water” rooms are particularly appealing, as they fan out on small man-made islets from the central sunset bar. After watching the sun sink over the water and enjoying one too many cocktails, you can stagger back to your room in just a couple of lurches. The hotel is within easy reach of Hanoi’s best international restaurants and cafes, such as Argentinian steakhouse El Gaucho and Australian-owned coffee specialists Maison de Tet Decor. Best hotel for family getaways: Elegant Suites Westlake Neighbourhood: West Lake In Hanoi for more than a few days? Consider a serviced apartment right in the middle of the city’s expat enclave, walking distance from international restaurants, cafes, bars and, more recently, a cinema. All rooms enjoy a living room space, small kitchen, dining area and balconies – most with views of West Lake. There’s a range of room types depending on the size of your party, from single-room studios to three-bedroom suites, and you’ll have access to a capacious pool and fitness room to boot. Best hotel for mixing business and pleasure: Lotte Hotel Hanoi Neighbourhood: New central business district Hoan Kiem Lake may be Hanoi’s heart and soul, but the Lotte Centre Hanoi building, at the crossroads of two of Hanoi’s main traffic arteries, is increasingly thought of as the city’s central point. Occupying the upper tier of this 65-floor skyscraper, all the Lotte Hotel Hanoi rooms offer spellbinding views whatever the direction: West Lake to the north, the old city to the east and the new business district to the southwest. The variation in viewpoints reflects the ideal location, especially if you’re mixing business with pleasure – everywhere you could possibly want to be is no more than 15 minutes by cab. Best hotel for architecture enthusiasts: JW Marriot Hotel Hanoi Neighbourhood: French Quarter On the lookout for something completely different? Journey to the west to uncover Hanoi’s newest precinct and the city’s most dazzling contribution to contemporary architecture: the JW Marriot Hotel Hanoi. Extravagance is served up in buckets, with crisply designed rooms and various private lounges spread throughout the hotel. Plus, there are no fewer than six fabulous restaurants, including French Grill, serving (you guessed it) fine French food, and John Anthony Cantonese Grill & Dim Sum, which specialises in Cantonese cuisine. JZ Best hotel for the celebrity guestbook: Sofitel Legend Metropole Neighbourhood: The French Quarter If you’re after luxury with a healthy injection of heritage, look no further than The Sofitel Legend Metropole in Hanoi’s French Quarter. It became the first five-star hotel in Asia when it was built in 1901 and has welcomed celebrities through its Belle Epoque doors ever since (it’s where Charlie Chaplin spent his honeymoon). With several bars and restaurants, a tranquil swimming pool and spa, and staff that cater to your every whim with a smile, you’ll be hard-pressed to leave the French colonial environs – though the central location means a street food tour is never too far away. Choose between the original Indochinese or modern wings – and be sure to tour the bunker built during the American War. HH Read more of our hotel reviews: Best Cape Town hotels Where to stay in Dubai The USA’s best hotels Read more about Asia travel: Thailand travel guide: Everything you need to know Asia’s most cycling-friendly cities The best Japanese destination swaps Read More The best countries to travel to in southeast Asia Vietnam travel guide: Everything you need to know before you go The 10 best UK city breaks for a weekend trip in 2023 Best UK hotels 2023: Where to stay for a luxury or affordable break Why this Moroccan mountain town should be your next short break The best wild swimming stays in the UK
2023-06-23 23:22

A Black student was suspended for his hairstyle. The school says it wasn't discrimination
The same week his state outlawed racial discrimination based on hairstyles, a Black high school student in Texas was suspended because school officials say his dreadlocks violated the district’s dress code
2023-09-18 13:23

EU consumer group calls for 'urgent investigations' of generative AI risks
Consumer groups in Europe are urging authorities to protect consumers against the risks of generative
2023-06-21 02:21

'The View' host Ana Navarro shares her advice for traveling with pets around the world: 'You gotta have enough food'
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2023-07-10 18:21

US says it's horrified by conditions in Ethiopia after theft leads to food aid pause and deaths
The United States humanitarian agency tells The Associated Press it is horrified by conditions in Ethiopia
2023-06-29 16:27

Is Lenny Hochstein a bad father? 'RHOM' star Lisa Hochstein calls out ex-husband for not taking care of children amid custody battle
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2023-07-27 11:59
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