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A 27-year-old woman with a rare genetic disorder who could only identify with Mickey Mouse while growing up due to the shape of the Disney character’s hands is trying to be the role model she never had as a social media influencer, to show people with disabilities they are “fully worthy and capable” of achieving anything. Rochelle Muir, who lives in Colorado, was born with ectrodactyly, which means she has three fingers and a thumb on each hand, two toes on her right foot, and four toes on her left foot. The condition causes difficulties in buying footwear, and with relationships – with one of her ex-boyfriends splitting up with her due to the possibility of their child being born with ectrodactyly – but she is now happily partnered with Charles, 31, a primary school counsellor who, along with her father Bill, is her “biggest cheerleader”. Rochelle, who is a client engagement manager for a healthcare company, could identify with characters such as Mickey Mouse growing up as he also has four digits, but she said “being like a cartoon is not exactly the role model you want”. She now posts pictures and videos on her social media platforms to educate others about ectrodactyly, raise awareness of the limb difference community, and share her hobbies, including gaming. “I remember specifically always loving the characters which had brown hair whenever they were in Barbie movies because I thought, ‘Oh, she’s like me!’,” she told PA Real Life. “But I never had that feeling when it came to my limb differences.” Rochelle has never let the disorder hold her back despite being teased and bullied at school, but when she entered the dating world in her 20s, she faced rejection multiple times and felt she was not “capable or worthy of having an amazing relationship”. “I’ve never been rejected over something that I couldn’t change about myself, something I was born with, and that was probably the first hit to my confidence with my limb differences where I felt awful about being born the way I am, about being disabled,” she said. “I just thought, I’m never going to find a meaningful relationship, I’m not worthy, I’m not capable, and that was the dialogue that kept going through my brain over and over again.” Rochelle has since removed “that nasty little voice out of (her) head”, found love with partner Charles, and shared her story publicly on social media, as she wants to “uplift” others among the disability community and show the world that “disabled is not a dirty word”. She said she is no longer “worried about showing (her) true self” and wants to encourage others to do the same. “Most people usually point out the negatives, but there are so many great positives with going and finding other people that look like you, other people you can connect with, and just creating this amazing community where you can uplift each other,” she said. “That’s one of the things I love about social media so much because when I came out about my limb differences, other people reached out and said, ‘Hey, I look exactly like you, this is so exciting, I’ve never seen anyone else that has the same hands as me’. “So it’s one of my favourite things now – and, yes, it’s sad that we didn’t have that growing up, but at least it’s there now and we can have that moving forward.” Ectrodactyly is a rare genetic disorder, and symptoms can vary, the National Organisation for Rare Disorders says. Rochelle underwent surgery to minimise the gap between her fingers and remove the longer toe on her right foot, enabling her to have improved grip and wear shoes from a young age. However, finding the right shoes has been an ongoing challenge and, when she was younger, she could not understand why she could not wear the same shoes as “able-bodied” people. “I remember specifically, there was a time, I think I was about five, that I tried to get my mum to buy me a pair of flip flops – they were pink, and they had butterflies and flowers on them,” she said. “My mum was so heartbroken because she couldn’t fully explain to me, ‘No, you can’t wear these shoes, they are going to be too dangerous for you’. “She eventually just caved and got me the shoes, and we were going up the escalator to go to the next floor in the mall, and I tripped, and we fell. “Ever since then, I’ve thought, I’m going to wear shoes that will stay securely on my feet.” Throughout her life, Rochelle has used humour to “defuse” awkward or uncomfortable situations and to enhance her confidence, but when it came to dating, for the first time in her life she felt self-conscious and “unworthy of having a real relationship”. She remembers one boyfriend who “was like a deer in the headlights” when he saw her feet for the first time, and another who ended the relationship over the possibility of their child being born with ectrodactyly. “He talked to his family, and his mum at the time said, ‘You need to decide whether you want to have kids because if you do, you have to break up with her’,” Rochelle explained. “The relationship ended, and I thought, I can’t blame him, but when I spoke to my friends, they said, ‘You’re amazing. What’s wrong with having a child with a limb difference?’ “That’s when I realised that I had internal ableism, where I told myself that having a disability is awful – ‘you’re not capable, you’re not worthy of having an amazing relationship’.” Ableism is discrimination in favour of able-bodied people – and it was at this point that Rochelle decided she wanted to do something about the lack of representation for people with ectrodactyly on social media. This “lit the fire” in her to share her story publicly for the first time, aged 25, and she has never looked back. Since then, she has launched her own Instagram, TikTok and YouTube channels on which she discusses ectrodactyly, limb differences and other disabilities, along with her hobby of gaming, and she has met Charles. Reading positive comments and messages, including from mothers of children who describe her as “an amazing role model”, has been “heart-warming” and makes her emotional – and she wants to continue to “fight ableism and bring more representation for the limb difference community”. “The biggest thing for me is representation for the limb difference community, but also for other disabilities as well, because the more we have that out there, the more of a norm it will be,” she said. “I want to be that role model, that person I wanted to look for in social media growing up, that person that younger me would be proud of and say, ‘Oh yeah, I know her, she’s so awesome, I’m just like her’. “It’s a younger me that inspires me to keep going forward and talking about these things, and I want to give the message that disabled is not a bad word, it’s not a dirty word, and you are fully worthy and capable of anything you put your mind to.” Find out more about Rochelle and her social media channels at beacons.ai/goodmornindreamer Read More Tempted to try barefoot running? 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It’s no secret that women are more likely than men to be misdiagnosed by a medical professional. In fact, as many as 57 per cent of women have reported being wrongly diagnosed by a doctor. In 2016, a study found that women have a 50 per cent higher chance than men of receiving a misdiagnosis after a heart attack, while researchers found in 2014 that 33 per cent of women are more likely than men to be misdiagnosed after a stroke. When it comes to women’s health, an explicit gender bias in medicine can lead to serious and sometimes life-threatening results. That’s why Dr Erin Nance, an orthopaedic hand and wrist surgeon located in New York City, has dedicated the month of October to sharing the most commonly misdiagnosed health conditions that affect women. Her series has since gone viral on TikTok, as she discussed how symptoms of rare autoimmune disorders or infertility can present differently in women, leading to a misdiagnosis. For the first video of the series, Dr Nance revealed how postural orthostatic tachycardia syndrome - also known as POTS - affects more than one million people, but is present in mostly women aged 20 to 50. However, Dr Nance explained that POTS is so difficult to diagnose because “we can’t see it”. “This is the group of women that get written off by doctors because they look healthy. There doesn’t seem to be anything wrong with them,” she said. According to the National Institute of Neurological Disorders and Stroke, POTS is a condition in which a reduced volume of blood returns to the heart after someone stands up from a lying down position. As a result, patients with POTS may experience an increased heart rate, dizziness, or fatigue when they stand up after lying down. @littlemissdiagnosed Day 1: It’s me, POTS, I’m the the problem it’s me #littlemissdiagnosed #31for31lmd #pots ♬ original sound - Dr. Erin Nance ?? Dr Nance explained that some other symptoms of POTS include “chronic fatigue, brain fog, total body chronic pain, GI [gastrointestinal] stomach issues, anxiety, headaches, and it can affect any part of your body”. Another difficulty about POTS is that there’s “no specific treatment” to help the condition, Dr Nance said. “We can’t do a biopsy, we can’t do any imaging, there’s no blood test for it,” she added. Instead, doctors may recommend drinking more fluid, exercising regularly, or wearing compression stockings to keep blood flow in the centre of the body. For the 14th day of her video series, Dr Nance received 1.4m views when she spoke about the commonly misdiagnosed symptoms of stroke in women. “Stroke is the third leading cause of death in women,” she began the clip. “Yet, women are over 33 per cent more likely to be misdiagnosed when having an acute stroke.” Dr Nance admitted that most women who experience a stroke are often told by doctors that they simply have anxiety or a migraine. When it comes to the “unique” symptoms of stroke that are present in women, some may experience loss of consciousness or fainting; general weakness; shortness of breath; confusion, unresponsiveness, or disorientation; sudden behavioural change; agitation; hallucination; nausea or vomiting; seizures or even just hiccups. @littlemissdiagnosed Day 14: Stroke is no joke #littlemissdiagnosed #31for31lmd #stroke ♬ original sound - Dr. Erin Nance ?? “These unique symptoms are often the ones that are overlooked,” Dr Nance said, before detailing the individual risk factors that can put women at a greater chance of having a stroke. The first on the list of risk factors was taking birth control pills, followed by pregnancy, hormone replacement therapy, and history of suffering from migraines. “The reason why this is so important for everyone - every normal, everyday person - to know this is because the best outcomes are when women are evaluated and treated within three hours of having this symptom,” Dr Nance added. On day 16, the orthopedic surgeon explained how symptoms of a heart attack can also be wrongfully overlooked by doctors. “More women than men die of heart disease every year, yet women have a 59 per cent increased risk of being misdiagnosed with acid reflux, stress, or anxiety,” Dr Nance said. Besides chest pain, a woman may exhibit signs of a heart attack when she experiences unusual fatigue for several days; sleep disturbances; shortness of breath; lightheadedness; nausea or cold sweats; indigestion or gas-like pain; and pain in the arm, neck, jaw, or back. @littlemissdiagnosed Day 16: It’s not always Big on the Peloton #littlemissdiagnosed #31for31lmd #heartattack #womensheart ♬ original sound - Dr. Erin Nance ?? When it comes to multiple sclerosis (MS), Dr Nance revealed on day 19 of her video series that women are 83 per cent more likely to be misdiagnosed for MS by a doctor. MS is a disease that affects the “myelin” - the protective sheath covering the brain, nerves, and the spinal cord. According to Dr Nance, some of the often-missed signs of MS include extreme fatigue, confusion, forgetfulness, and mood swings. @littlemissdiagnosed Day 19: You’re gonna be okay #littlemissdiagnosed #31for31lmd #ms #multiplesclerosis ♬ original sound - Dr. Erin Nance ?? As for lupus - an autoimmune disease in which the immune system attacks its own tissues, causing inflammation in the body - Dr Nance shared in the 20th video of her series that women between the ages of 15 and 45 are most likely to develop the disorder. “The average time from when you first develop your symptoms to diagnosis is six years,” Dr Nance revealed. @littlemissdiagnosed Day 20: Sneaky little ? #littlemissdiagnosed #31for31lmd #lupus ♬ original sound - Dr. Erin Nance ?? She claimed that 46 per cent of patients report being misdiagnosed with something other than lupus, while “54 per cent of them were told that either nothing was wrong with them or that their symptoms were psychological.” “The main problem with lupus is that the longer you go undiagnosed and untreated, then the greater risk for end organ damages,” she added. The Independent has contacted Dr Nance for comment. 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