More must be done to get black, Asian and ethnic minority people to participate in breast cancer trials, experts have said, as they warned that people from these backgrounds have been under-represented in previous studies. Medics said that they want research into the disease to be “relevant to people we see in the clinic”. Experts said that there is a “broad misperception” that black women “don’t suffer as much from breast cancer” which can result in the perception that “cancer is a white person’s disease”. If I hadn’t gone on the trial at The Christie, I wouldn’t be here today Jasmin David This is despite the fact that previous studies have found that black women are more likely to die from breast cancer compared to their white peers. They are also more likely to develop more aggressive cancer and be diagnosed when their cancer is at a more advanced stage. It comes as the NHS Race and Health Observatory launched a new campaign alongside Macmillan Cancer Support to improve diversity in breast cancer clinical trials. The project, which is being supported by Roche, aims to raise awareness of the lack of diversity in clinical studies, improve communications and provide longer term support to patients. Specialist nurses will be provided at two major cancer hubs – Bart’s Health NHS Trust in London and The Christie NHS Foundation Trust in Manchester – to help guide patients through the process. Men, who account for 1% of breast cancer patients in the UK, are also being included. The NHS Race and Health Observatory said that there are “multiple barriers” around the recruitment, communication and retention of black, Asian and ethnic minority patients in clinical trials. It said that data show that people from an ethnic minority background are poorly under-represented in many clinical trials. And the Caribbean African Health Network said that there has been a “disengagement” in research “as a result of mistrust”. Jasmin David, a 53-year-old breast cancer patient from Fallowfield in south Manchester, took part in a clinical trial which saved her life and is encouraging others to do the same. Two years after her initial diagnosis and treatment at The Christie she was told that the cancer had come back and had spread to her lungs, lymph nodes and chest bone. The mother-of-two was told she had less than a year to live but was also offered the opportunity to take part in a clinical trial at the National Institute for Health and Care Research Manchester Clinical Research Facility. Ms David is now cancer-free. “If I hadn’t gone on the trial at The Christie, I wouldn’t be here today,” she said. “I have two children and now I get to be there for them as they grow up. “Research gave me a second chance and life and I’m relishing every second of it. “I want everyone, no matter their ethnicity, to have equal access to clinical trials, so I’m glad that this important piece of work is being done. I hope that by sharing my story I can inspire more women like me to come forward and take part in clinical trials.” Dr Habib Naqvi, chief executive of the NHS Race and Health Observatory, said: “We are pleased to announce this partnership and our joint commitment to ensuring inclusion and representation in future breast cancer trials. “We believe that when targeted, culturally sensitive interventions and communications are put in place, under-represented groups can be successfully recruited into clinical trials.” He added: “There is a broad misperception that black women don’t suffer as much from breast cancer or it does not run in their family history. This can result in the perception that cancer is a white person’s disease. “We want this pilot to encourage women at risk, those already diagnosed and individuals undergoing post treatment to come forward and share their experiences and get the information needed.” Professor Richard Simcock, chief medical officer at Macmillan Cancer Support, added: “As a Breast Cancer Oncologist I want to know that research is relevant to the people we see in clinic. Historically that has not been the case. “I’m delighted that Macmillan can support this project to ensure that future evidence from clinical trials is representative and inclusive.” Charles Kwaku-Odoi, chief executive of the Caribbean African Health Network, said: “Across the black community there is an undoubted legacy of disengagement in research and most certainly clinical trials that stems back decades as a result of mistrust. “This has not served us well because it leads to a lack of appropriate interventions that perpetuate the grave health inequalities in breast cancer care. “This partnership approach to build solutions to improve engagement in clinical trials in breast cancer treatment and care is very much welcomed. We are looking forward to working in a collaborative way to build trust, improve awareness and ensure that barriers surrounding access to clinical trials are addressed.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live 10 slick ways to kit out your student digs 4 essential officecore trends to update your work wardrobe Sickle Cell Awareness Month: What is sickle cell disease and how do you know if you have it?

During the wait for improved online safety laws, tens of thousands of grooming crimes have been recorded. The Online Safety Bill, which is meant to become law this autumn, has encountered numerous delays and changes since it become a proposed legislation. As a result, the children’s charity NSPCC has called on MPs and tech giants to support the Bill, especially since 34,000 online grooming crimes had been recorded by UK police forces over the last six years, since first calling for more robust safety regulations in 2017. Based on data from 42 UK police forces, the NSPCC said that last year, 6,350 offences related to the sexual communication with a child were recorded. Some 5,500 took place against primary school-aged children, and 73% of the crimes were related to Meta-linked platforms or Snapchat. NSPCC chief executive Sir Peter Wanless said: “The number of offences must serve as a reminder of why the Online Safety Bill is so important and why the ground-breaking protections it will give children are desperately needed. “We’re pleased the government has listened and strengthened the legislation so companies must tackle how their sites contribute to child sexual abuse in a tough but proportionate way, including in private messaging.” Here are some of the red flags parents should be on the look out for. Being secretive about how they are spending their time On their website, Childline define grooming as someone building a child’s trust to make a connection in order to do something sexual or illegal. “Studies show parental supervision typically declines as children get older, however online abuse does not,” said Mark Bentley, safeguarding and cyber security lead at charity The National Grid for Learning (LGfL). From being secretive to omitting relevant information, changes in behaviour can vary from child to child. But it’s something for all parents to be mindful of when their child starts using social media more. “Unfortunately, as in many areas of child protection, indicators of abuse can often mirror natural markers of growing up,” said Bentley. “As children and adolescents develop, they seek independence from parents, engage in risk taking and have changes in mood and friendship group. “Nonetheless, these markers remain vital to watch out for, even if it is just to support your growing child. Those who are being groomed online are much more likely to be defensive and secretive about phone usage and loathed to be separated from their device.” Having unexplained gifts, big or small Buying gifts for children, whether big or small, can be another grooming technique used to flatter children and their families. “Some groomers have been known to provide alternative phones just to contact them, and this is always a red flag if you suspect your child may have a secondary device,” said Bentley. They are spending too much time onlineSocial media may promote negative experiences if no boundaries have been established.“Of course, some of these [red] flags can also be a sign of the child going through adolescence but it’s important to discuss any unusual behaviour with them as soon as possible,” said Simon Newman, member of International Cyber Expo’s advisory council and of the Cyber Resilience Centre for London.“The way groomers target children varies, but is often done through social media sites, text messages and apps, emails or online forums – particularly gaming sites.”They develop friendships with a much older person Children and young people can be groomed by a stranger or by someone they know – such as a family member, friend or professional, according to NSPCC. But the age gap between a child and their groomer can also be relatively small. The groomer may also work towards building a relationship with the family to gain trust, so they can be left alone with the child. “There are various models of the stages of grooming, but at heart it revolves around building up trust and making a child feel understood and listened to in a way they do not feel elsewhere, and then breaking down the links of trust to family, school, friends and other adults,” said Bentley. “Any parent thinking that this might be happening should definitely reach out for help.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Rumer Willis says she is ‘grateful’ to her body following birth of daughter Sugary cereals and yoghurts must remove child-friendly packaging – health group Clever kitchen storage solutions to clear the clutter

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