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Chef whose blood flows backwards says excruciating pain ‘cuts like a knife’
A single mum whose blood sometimes flows “backwards” has been left in excruciating pain and living “penny to penny” after a CT scan revealed she is likely to have pelvic congestion syndrome – but the next available appointment is not until 2024. Lolita Vaciete, 33, called the NHS in tears and begged them to expedite her treatment but was told she would have to wait a year before she could see a blood specialist about her condition, which is not life-threatening but makes everyday tasks like taking her eight-year-old son Jakob to school a logistical nightmare and means she runs the risk of passing out while on her period. While waiting for her appointment, Lolita, who has worked as a gourmet chef for 15 years, has been prescribed “strong painkillers” to help cope with the agony which she describes as like being “cut with a knife”. She was forced to take sick leave in March as she cannot stand up for more than a few hours at a time, and says the decision to postpone her treatment has “ruined her life” and that if her income continues to dwindle, she will be plunged into debt. Faced with no other option, Lolita is looking to raise money to afford private medical treatment as she fears Jakob is also suffering because of her condition. Pelvic congestion syndrome is a long-term condition where veins in the lower abdomen stop working properly, allowing blood to back up, causing the veins to become congested. Lolita, who lives in Milton Keynes, said: “Taking care of my son is what keeps me going and helps me find the strength to continue doing stuff, even though I can’t physically. “I feel like I’ve been locked in a box and told to just stay and wait. “I don’t understand how it can take 14 months for a blood specialist and gynaecologist to see me.” Lolita did not think it was “serious” when she started feeling pain around her abdomen in June last year. But over the next few months she rapidly lost weight and the pain intensified. “In the past year, I lost two stone without even trying,” she said. “Every time I moved, it felt like someone was cutting me with a knife in the right side of my abdomen. “I was very weak and couldn’t stand up for long without feeling dizzy. “I was constantly going to the toilet, like every half an hour.” In November, Lolita visited Milton Keynes University Hospital after the pain became unbearable and returned for a CT scan a month later which revealed she was likely to be suffering from pelvic congestion syndrome. “The scan showed my blood vessels were dilated,” she said. “They should not be more than 5mm and one of my veins was already 8mm.” She was told a meeting would be scheduled the following month with a blood specialist and gynaecologist to review the scan and confirm her diagnosis, but that never happened. She said: “I received a letter saying somebody will call me in a month’s time to schedule the appointment. “But I didn’t hear anything back, so I called them and received another letter saying my appointment had been delayed.” This went on until last month when Lolita received a letter saying she would not be able to see a gynaecologist until April 2024 and a blood specialist until June 2024. I feel like I've been locked in a box and told to just stay and wait Lolita Vaciete “I called them in tears and said it was urgent, but they could only move the gynaecologist to February 2024,” she said. “I can’t believe that it takes so long to see a gynaecologist.” While Lolita’s condition is not life-threatening, her world has been turned upside down and there is a chance she will have to have her uterus removed. “Whenever I get my periods, I have to stay in bed because I can pass out from losing too much blood,” she said. “If you look at who I was a year ago and who I am now, it has had a huge impact. “Everything I do has to be simplified and my life has become five times slower.” Even simple tasks like taking Jakob to school, a 20-minute walk down the road, have become an ordeal. “I am a single mum and I don’t have any support around me,” she said. “When my blood starts flowing backwards my blood pressure changes quickly, so I can be washing up and then I suddenly need to sit down.” Lolita was working as a fine dining chef until March but was forced to take sick leave as her condition got worse. “I was working full time but I’ve had to stop because I can’t be in a hot environment or standing for long hours,” she said. “I’m on sick leave but I’m getting paid less and less money. “If it continues I think that I will end up getting into debt this summer. “I’m literally living penny to penny to pay my bills.” Lolita says her condition is extremely severe and is also impacting her son who is not accustomed to seeing her so weak and does not fully grasp the situation. “I’m asking because I’m desperate for me and for my son,” she said. “I have noticed that he has been feeling a little down recently and I think it’s because he is used to seeing his mum as a strong woman.” While waiting for treatment, Lolita has been prescribed strong painkillers to help ease the agony. “That’s how they want to fix me, ‘here, take a tablet and carry on’,” she said. But there is nothing she can do to improve her condition other than avoid certain foods like vegetables which thin the blood. “It just feels as though my life isn’t important enough,” she said. Lolita says her GP suggested the backlog may be due to the NHS strikes announced in November. With nowhere else to turn, Lolita has set up a GoFundMe page and has raised more than £500 of her £4,000 target to pay for treatment called vein embolisation. “I looked at going private but the costs are too big, I just can’t afford it,” she said. “I spoke to my friends and they suggested I start a GoFundMe page. “This money will help me get treatment this year, and I will be able to make beautiful memories with my son this year. “My heart is breaking when he doesn’t understand why I am not the same. “I am suffering alone and losing hope.” To find out more about Lolita’s fundraising, visit www.gofundme.com/f/help-end-lolitas-pain. A spokesperson for Milton Keynes University Hospital said: “Ms Vaciete came in via our Same Day Emergency Care unit for urgent same-day assessment. Following triage by a clinician and a CT scan, Ms Vaciete was booked in for a non-urgent routine outpatient appointment. “This is currently scheduled for February 2024 as the next available appointment. “We are constantly reviewing our waiting lists and aim to bring appointments forward where possible, with patients being seen in order of clinical priority. If Ms Vaciete’s symptoms are getting worse, we would advise that she contact her GP.” Read More Gaining weight before 30 raises cancer risk decades later Teacher, 25, rushed to hospital with stomach ache diagnosed with terminal cancer Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live
2023-05-17 15:49
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Fans accuse Hailey Bieber of breaking wedding guest etiquette with ‘white’ dress: ‘Yikes’
Hailey Bieber has divided fans after she appeared to attend her friend Stephanie Shepherd’s wedding in a white dress. Over the weekend, Bieber, 26, was accompanied by her husband Justin Bieber as they attended the Beverly Hills nuptials, where they were joined by fellow celebrities including Kim Kardashian, Kris Jenner, and Malika Haqq, according to photos of the festivities shared by the DailyMail. For the occasion, the Rhode Skin founder opted for a white, backless, long-sleeved gown with a high neck. She paired the look, which she later shared photos of on Instagram, with teal eyeshadow, a pale blue fur purse, and simple jewellery. According to the photographs, Justin wore an oversized white button-down shirt and black pants for the wedding of Shepherd, Kardashian’s former assistant, while the Skims founder, her mother, and Haqq were all photographed in black gowns. On social media, Bieber’s outfit choice has sparked criticism from fans, with some questioning the model’s choice to wear white to a wedding. “The only thing I want to know is why the f**k you wore white to a WEDDING,” one person commented under Bieber’s photos, while another asked: “Why is she wearing white to a wedding???” “Isn’t it against wedding law to wear anything close to white to a wedding?” someone else wrote. “I’m not even hating but it’s a huge yikes…” According to Diane Gottsman, a national etiquette expert and founder of The Protocol School of Texas, who previously spoke to The Independent, the rule against wearing white still applies for most weddings, as she noted that “white is still reserved for the bride” and that guests “should select another colour” when choosing an outfit. As for why guests should avoid white for a wedding, wedding dress designer Madeline Gardner previously told The Knot that it comes down to “the most important thing to keep in mind,” not upstaging the bride. Although many of Bieber’s fans questioned her dress choice, others argued that the model’s dress was actually light blue. “Her dress is light blue, not white,” one person claimed in the comments under Bieber’s Instagram post, while another said: “Before y’all start with your think pieces… the dress is baby blue. She wore baby blue head to toe.” However, others suggested that, even if Bieber’s dress was light blue, the light shade meant that it was still a breach of wedding etiquette. “This is too close to white I fear,” one person tweeted. “Is it me or is that dress pretty much white,” someone else wrote in response to the photos of the couple. While most were in agreement that guests should generally avoid wearing white to a wedding, others pointed out that Shepherd may have requested that attendees wear either white or black to her nuptials. “The theme was white and black right? Because it doesn’t make sense for this woman to be in WHITE at a wedding. I’ll be giving the benefit of the doubt,” one person tweeted. Although Shepherd did not post photos from the wedding, Swizz Beats shared an album of photos taken during the reception, in which Alicia Keys could be seen wearing a green dress. Bieber was not the only guest who faced backlash over the outfit she wore to the wedding, as fans also questioned the appropriateness of Kardashian’s dress, which featured a bra-style top and a skirt with cut-out details. “Is she going to a club or a wedding?” one critic asked. Shepherd, who previously held the role of COO of Kardashian’s KKW company before parting ways with The Kardashians star, married Larry Jackson, the former global creative director at Apple Music who recently created music company Gamma. Olivia Wilde faced similar criticism earlier this year after she wore a white gown to Colton Underwood’s wedding to Jordan C Brown. The Independent has contacted a representative for Bieber for comment. Read More Man sparks debate about engagement etiquette after proposing at girlfriend’s college graduation Woman sparks debate about what makes a dress too similar to a wedding gown Olivia Wilde sparks etiquette debate after wearing ‘wedding dress’ to Colton Underwood’s nuptials Bride’s friend calls out ‘sad and disrespectful’ wedding guests over outfits Influencers called out for visiting and promoting Shein’s factory in China Gabourey Sidibe jokes she ‘needs to take a class’ on ‘boob tape’ Outfit choices for Barbie cast photo sparks hilarious reactions
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