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10 things you should know about living with a stoma
10 things you should know about living with a stoma
Musician Tom Speight was diagnosed with the long-term bowel condition Crohn’s disease 15 years ago. After undergoing emergency surgery for the condition , he had a stoma connected to his digestive system. As today marks World Inflammatory Bowel Diseases Day (IDB), Speight has opened up about the realities of living with a stoma and debunks 10 common misconceptions about his condition. A stoma is an opening on the abdomen that can be connected to either your digestive or urinary system to allow waste to be diverted out of your body. Stomas are sometimes used after surgery to remove cancers in your pelvic area or help treat inflammatory bowel diseases, such as Crohn’s disease or ulcerative colitis. How does Crohn’s impact on your life and mental health? Over the years, [there have been some] really difficult situations to deal with – I was hospitalised last year while I was making my album, and lying in hospital, not knowing if I was going to be well enough to finish what I’d been working so long and so hard for was really really demoralising. For me, stress is a big trigger, so when you’re stressing about keeping up with everything and keeping on top of things it was actually making me worse. There’s a ripple effect to this disease in that your limitations can affect how others [family and friends] live their life,” he said. “I’ve been having regular therapy since 2019 to help manage my stress and improve my mental health. Working out how to manage the condition is unbelievably frustrating. Finding the right team of doctors, the right medication, and the right diet is such a draining process. For me, one of the hardest parts is knowing that despite everything you try, the trial and error process you go through can ultimately put you back in hospital if it’s not quite right. It can be a scary thought. The prospect of having a third operation or a sixth stay in hospital is always there, at the back of my mind. Here are the 10 most common misconceptions about living with a stoma, according to Speight: 1. Swimming is fine Often people believe that having a stoma means you can’t enjoy the same hobbies and activities that you did before you had the operation. Swimming comes to mind first: I think people presume you’ll have a leakage or accident, but in the 10 years I’ve had the stoma. I’ve never once had a problem. The stoma bag is waterproof and secure due to its adhesive. There’s no reason why a person with a stoma can’t swim with confidence. 2. What you can and cannot eat When I first spoke to my stoma nurse, I asked about my dietary requirements and what to avoid... you’d be surprised about what’s on the forbidden list. Some people may be advised to avoid eating very fibrous foods, or foods with tough outer skins such as sweetcorn, popcorn, peas and potato skins, to avoid causing a blockage in the bowel. Often eating out can feel like a game of Russian roulette. I’ve had many episodes where I’ve been caught out and been absolutely floored in the process. 3. Being visible I was 24 when I first had the emergency surgery to have a stoma. At the time, I thought having the operation would mean my career was over... you can’t be a pop star and have a bag, right? In reality, no one actually will know until you tell them. I’ve worn tight-fitting clothes while channelling my best Freddie Mercury moves and it’s never been a problem. I kind of wish I could tell my younger self that things will be ok and it’s not the end. In some ways, it was just the start, because it gave me a whole new lease of life. 4. ‘Only elderly people have stomas’ I originally thought only old people have stomas, and yes, the elderly are more likely to have a stoma, but surgery can be performed on anybody at any age. I’ve met a number of younger people through the charity Crohn’s & Colitis UK who are just like me, and it’s quite comforting to know you’re not alone. 5. Sex Without being too graphic, this isn’t a problem. It’s all about finding the right partner who can make you feel safe and confident. 6. Smell A lot of the misconceptions about having a stoma were things I initially thought too. I thought it would be unhygienic and, quite frankly, not smell so fresh. The reality is, you’ll only ever notice the smell when you go change it in the toilet. In some ways, it would be no different from anyone else using the loo 7. Is this permanent? For some patients, a stoma is permanent. However, for many, an ostomy is performed to allow for the bowel to heal from scarring, inflammation and infection. I personally need to get to a level of health where a reversal could be performed, while also managing to take some time off to heal properly. 8. ‘You can’t exercise’ I think this misconception might be because people might think you’re vulnerable or weak due to the operation. Exercising regularly can have a really positive impact on people with a stoma, as it reduces the risk of a hernia and keeps your body fit. I’ve never felt stronger in my life. 9. Find the nearest toilet I think people often think you’re walking around with poop all day... this isn’t the case! You just have to go to the toilet like everyone else. 10. The reality is... Yes, it’s a life changing operation but with a few mindful changes you can lead a happy and healthy life. Just avoid the popcorn and drink plenty of water. Read More Ninety-five per cent of Black adults don’t swim – meet the people trying to change that How being seduced by gambling’s love bombing ended with a prison sentence ‘Unproblematic people don’t age’ reflects the stupidest kind of beauty standard Woman, 50, to become a surrogate mother for same-sex couple Doctors dismissed her as a hypochondriac. Then came an incurable diagnosis Festival founder hopes to help tackle women’s health taboos
2023-05-19 20:25
MILAN FASHION PHOTOS: Benetton reaches across generations with mix-matched florals and fruity motifs
MILAN FASHION PHOTOS: Benetton reaches across generations with mix-matched florals and fruity motifs
MILAN (AP) — Milan Fashion Week continued Thursday for the second day with mostly womenswear previews for next spring and summer under a steady rain.
2023-09-22 00:46
'Quordle' today: Here are the answers and hints for July 20
'Quordle' today: Here are the answers and hints for July 20
If Quordle is a little too challenging today, you've come to the right place for
2023-07-20 07:53
What is Bell’s palsy? The neurological disorder Tiffany Chen was diagnosed with after giving birth
What is Bell’s palsy? The neurological disorder Tiffany Chen was diagnosed with after giving birth
Robert De Niro’s girlfriend Tiffany Chen told Gayle King in an interview on CBS Mornings that she was diagnosed with Bell’s palsy after giving birth to their daughter Gia Virginia. Bell’s palsy is a neurological disorder which temporarily paralyses one side of the face and causes it to appear droopy and lopsided. According to the Mayo Clinic, the condition “causes sudden weakness in the muscles on one side of the face. In most cases, the weakness is temporary and significantly improves over weeks.” However, it’s not uncommon to experience paralysis on both sides of the face as Chen did. Also known as “acute peripheral facial palsy,” the disorder is an inflammation of the nerve which controls the facial muscles and could potentially be the result of a prior viral infection. While there is no confirmed cause of the neurological condition, The Facial Paralysis Institute has linked many cases to women post-pregnancy. The typical time frame for women to develop symptoms after giving birth is seven to 10 days (about one and a half weeks), according to the institute. Symptoms are likely to worsen within 48 hours (about two days) of when they initially appear and begin to ease up in the following weeks. A full recovery typically won’t take place until six months after. The 45-year-old actress noticed her speech was slurred and she was unable to eat in the week after delivery. “Women who experience Bell’s palsy symptoms after childbirth should pursue treatment immediately. Bell’s palsy that goes undiagnosed or untreated can lead to permanent facial paralysis,” the institute asserted. If the neurological disorder develops during pregnancy, the chance of complete recovery is lower. Per The Facial Paralysis Institute report: “The prognosis for complete recovery isn’t as great as the general population, 52 per cent vs 80 per cent, respectively. It should be noted that the poorer outcomes reported are likely related to the past reluctance of physicians to prescribe steroids and antivirals in treatment.” After eight months of experiencing symptoms, the individual is encouraged to seek long-term treatment, but in general, pregnant women are encouraged to be treated with steroids as any other person experiencing the disorder would. “Botox, neuromuscular retraining, and selective neurolysis” are all “novel treatments” for the permanent condition, according to the institute. “Botox injections can provide safe, reliable, and painless treatment of permanent Bell’s palsy post-pregnancy. When administered to the normal side of the face, the nonsurgical injections relax the overactive muscles, restoring facial symmetry and improving facial appearance,” the institute reported. Neuromuscular retraining is often administered after the individual has also received Botox injections. As for selective neurolysis, “the surgery provides reanimation of the smile that is lost with persistent Bell’s palsy. The procedure involves intricate mapping of the facial nerves to weaken those nerves counterproductive to the smile mechanism.” Read More Robert De Niro’s girlfriend Tiffany Chen reveals she lost ‘all facial functions’ after giving birth ‘It’s like having your legs broken’: The truth about flying as a disabled traveller Vaping is on every corner – so why do we still not know if it’s safe? Robert De Niro’s partner Tiffany Chen says she had Bell’s palsy after giving birth Robert De Niro’s girlfriend Tiffany Chen reveals she had ‘postpartum complications’ How to sleep during hot weather, according to experts
2023-07-14 01:23
Rita Moreno says she combats loneliness by making friends at grocery store
Rita Moreno says she combats loneliness by making friends at grocery store
Rita Moreno has revealed the unique way she made friends after finding herself suffering from loneliness. Ahead of her 92nd birthday on 11 December, the West Side Story star opened up about her struggles with loneliness after she moved into a new home. In an interview with People published 28 November, Moreno recalled feeling “so sad” after moving from her house in California’s Berkeley Hills area to a new condominium. The Broadway alum admitted she felt so lonely that it was even “affecting [her] appetite”. It wasn’t until her daughter, jewellerly designer Fernanda Luisa Gordon, noticed something was wrong that Moreno decided to combat her loneliness. “I really didn’t understand what was happening,” she told the outlet. “I remember thinking: ‘I can’t go on like this.’ I’m in the most beautiful apartment in the world as far as I’m concerned, and this is happening. Why is this happening?” The 80 For Brady star said she used her years of “therapy” and “psychotherapy” to help her self-reflect, ultimately deciding that it was her recent move away from friends and family that was making her unhappy. Moreno, who has one daughter and two grandsons, explained that her new home made it difficult for her friends and family to visit. “So when we make plans to see each other, we have to make plans, they can’t just kind of drop by,” she said. “I was really lonely.” Moreno admitted that she was “fascinated” when it dawned on her that she didn’t actually know how to make friends because she “never had to seek people’s company”. “You know why? Because people have always come to me,” she added. When the Family Switch star finally decided to “meet some people” on her own, she went to the supermarket to do some shopping and met a “lovely” woman who she had previously seen at the store. “She had this big smile on her face and she recognised me, obviously, and we started to talk,” Moreno recalled. “I said to her: ‘Would you like to have lunch with me?’” According to Moreno, the woman was shocked when the Hollywood icon asked to have lunch with her but she ended up accepting the invite. “She sat down and she said: ‘Do you always pick people up like this in the market?’” Moreno recounted. “I told her the truth. I said: ‘No, but you always have struck me as such a lovely person. Since I’m new here and I don’t know anybody, I thought I’d take a dip.’” Since then, the woman has become one of many people that Moreno befriended, including those from her apartment building. “I’m so lucky,” she added. The Puerto Rican actor landed her breakout role of Anita in the 1961 movie musical adaptation of Leonard Bernstein and Stephen Sondheim’s original Broadway musical, West Side Story. She later won the Academy Award for Best Supporting Actress for the role. Moreno also starred as a newly-created character, Valentina, in director Steven Spielberg’s version of West Side Story. In 1965, she married cardiologist Leonard Gordon, who later became her manager. They were married for 45 years, welcoming daughter Fernanda, before his death in 2010. In May, United States surgeon general Dr Vivek Murthy declared loneliness a public health epidemic, posing health risks as deadly as smoking a dozen cigarettes daily. In a report, Murthy stated that nearly half of US adults say they’ve experienced loneliness. The report also stated that loneliness can increase the risk of premature death by nearly 30 per cent, posing a greater risk of stroke and heart disease, as well as increasing a person’s likelihood for experiencing depression, anxiety, and dementia. The crisis was worsened due to the Covid-19 pandemic, as schools and workplaces shut down and people were required to quarantine and socially distance themselves. In 2020, Americans spent about 20 minutes a day in person with friends compared to 60 minutes daily just two decades earlier. “We now know that loneliness is a common feeling that many people experience. It’s like hunger or thirst. It’s a feeling the body sends us when something we need for survival is missing,” Murthy told The Associated Press in an interview. “Millions of people in America are struggling in the shadows, and that’s not right. That’s why I issued this advisory to pull back the curtain on a struggle that too many people are experiencing.” Read More Strictly’s Amy Dowden shares health update after being rushed to hospital Sam Thompson admits fears about ADHD and parenthood on I’m a Celeb Paris Hilton says using surrogacy was a ‘difficult decision to make’ Strictly’s Amy Dowden shares health update after being rushed to hospital Sam Thompson admits fears about ADHD and parenthood on I’m a Celeb Paris Hilton says using surrogacy was a ‘difficult decision to make’
2023-12-02 03:20
Behold, Trump's mugshot is here
Behold, Trump's mugshot is here
He's scowling. His iconic hairdo is well-coiffed. And he's under arrest. Former President Donald Trump
2023-08-25 09:28
Eli Roth's 'Thanksgiving' trailer is a feast of holiday-themed horror
Eli Roth's 'Thanksgiving' trailer is a feast of holiday-themed horror
The official trailer for Eli Roth's holiday horror Thanksgiving is here, and it is leaning
2023-10-05 14:58
'American Born Chinese' review: A coming-of-age story full of heart and unexpected heroes
'American Born Chinese' review: A coming-of-age story full of heart and unexpected heroes
American Born Chinese feels — respectfully — like an old Disney Channel original movie. Based
2023-05-24 18:29
Macron courts Tesla's Musk and others to 'Choose France'
Macron courts Tesla's Musk and others to 'Choose France'
By Michel Rose and Tassilo Hummel PARIS France is poised to win record foreign investment pledges when President
2023-05-15 21:22
I Found The Polished Theory Staples To Build An Elevated Capsule Wardrobe
I Found The Polished Theory Staples To Build An Elevated Capsule Wardrobe
Capsule wardrobes have a timeless appeal, but we really feel their pull during fall, when the transitional weather makes dressing feel chaotic and we all long for reliable staples that can see us through any event or temperature change. I know the struggle is real, and readers, I’m wholeheartedly here with you. Ever since I entered my mid-20s, I’ve been searching for timeless interchangeable pieces that I can fashion for the office to elevated work events and weekend gatherings with friends. Luckily, I found fresh staples from Theory’s Wardrobe Collection for my fall wardrobe, so before you pull out your leather jackets and heavy wool coats, let us direct you to the brand’s newest offerings.
2023-09-21 05:49
The psychology of Big Brother: How to survive in the house
The psychology of Big Brother: How to survive in the house
Big Brother has returned to British TV for the first time in five years. Hosted by AJ Odudu and Will Best, the ITV reality show has kicked off with 16 housemates living together in a custom-built home without access to the outside world – all in a bid to win £100,000. Since Big Brother first aired on Channel 4 in 2000, it’s become known as the ultimate social experiment. Here are a few tips from psychologists on how the new contestants can survive being cooped up in a house with a group of strangers, under the continuous monitoring of Big Brother… The psychology of Big Brother For Dr Rachael Molitor, a psychologist and lecturer at Coventry University, the psychology behind Big Brother involves “the intricate interplay of 24/7 surveillance on human behaviour, participant isolation from the outside world, and psychological challenges around newly formed and integral social friendships and group dynamics”. Although it may be deemed similar to other TV programmes, such as Love Island or The Traitors, where contestants also live together in a new home, Big Brother is different. “It has a unique stance, in that the contestants are not a cookie cutter of a particular type of person needed for the show’s storyline,” Molitor said. “With Love Island and My Mum Your Dad, the contestants needed to be single and of a certain age or criteria. With Big Brother, we can see a number of varying contestants, all with different backgrounds and personalities.” However, Molitor notes that Big Brother is “less of a psychological observational experiment” and “more of a TV entertainment viewing opportunity – and edited as such”. She said: “The environment provides a rich opportunity for the study of human behaviour, social dynamics, and the psychological effects of living in a controlled, highly competitive and monitored setting.” How can contestants survive in the Big Brother house? For Molitor, the key to survival is for contestants to be themselves. “Due to the length of time contestants will be on the show, it’s important to build strong genuine relationships. Effective communication supports the positive experience of all housemates,” Molitor added. Dr Sarita Robinson, associate dean of psychology and humanities at the University of Central Lancashire (UCLan) agrees, and said: “Like with any group of people in an enclosed space, inter-group conflict is likely to occur. “Rather than reacting immediately to something that has annoyed you, it is best to walk away and wait for 15 minutes. It’s amazing how a little bit of time can take the heat out of a situation for the contestants.” How can they protect their mental health? Taking care of your mental health isn’t always the easiest thing to do on a reality TV show, Robinson suggested. “Due to social evaluative stress that relates to what people think of us, this can have a marked impact on our physiological stress levels if we think people are making negative judgements about us.” But things have changed since the show first aired. “With the new care of duty plan, contestants can ask for help when needed and get mental health and wellbeing support prior to, during and after the show has ended,” Molitor said. Whilst in the house, there are a few “small health-enhancing behaviours” contestants can do. These include “getting enough sleep, exercise and healthy eating to support their health and wellbeing throughout”, Molitor advised. Robinson also warned against behaviours that might impact your state of mind. “If people start to stress their brains by drinking alcohol, having poor quality sleep, restricting their food intake or changing their normal use of things like nicotine, caffeine or medication like antidepressants, it can have an impact on the brain,” Robinson said. “For example, if you don’t get a good night’s sleep your brain will struggle to work as well as it usually does, which can cause problems with emotion regulation. The knock-on effect of this might make you more likely to be grumpy and have a row with someone.” Big Brother airs nightly on ITV2 and ITVX, excluding Saturdays. Read More How to support someone coming out in their 30s and beyond Israel-Hamas conflict: How to talk to teenagers about distressing news stories Autumn décor ideas for a seasonal refresh Why you shouldn’t tidy your garden too much in autumn World Mental Health Day: 5 ways to beat anxiety and change your life Alternative veg to grow for next season
2023-10-11 17:20
Airline delays and cancellations are bad. Ahead of the holiday weekend, they're getting worse
Airline delays and cancellations are bad. Ahead of the holiday weekend, they're getting worse
Air travelers have been putting up with widespread delays all month, and it's continuing again, as bad weather rakes the Northeast
2023-06-29 05:49