10 things you should know about living with a stoma
Musician Tom Speight was diagnosed with the long-term bowel condition Crohn’s disease 15 years ago. After undergoing emergency surgery for the condition , he had a stoma connected to his digestive system. As today marks World Inflammatory Bowel Diseases Day (IDB), Speight has opened up about the realities of living with a stoma and debunks 10 common misconceptions about his condition. A stoma is an opening on the abdomen that can be connected to either your digestive or urinary system to allow waste to be diverted out of your body. Stomas are sometimes used after surgery to remove cancers in your pelvic area or help treat inflammatory bowel diseases, such as Crohn’s disease or ulcerative colitis. How does Crohn’s impact on your life and mental health? Over the years, [there have been some] really difficult situations to deal with – I was hospitalised last year while I was making my album, and lying in hospital, not knowing if I was going to be well enough to finish what I’d been working so long and so hard for was really really demoralising. For me, stress is a big trigger, so when you’re stressing about keeping up with everything and keeping on top of things it was actually making me worse. There’s a ripple effect to this disease in that your limitations can affect how others [family and friends] live their life,” he said. “I’ve been having regular therapy since 2019 to help manage my stress and improve my mental health. Working out how to manage the condition is unbelievably frustrating. Finding the right team of doctors, the right medication, and the right diet is such a draining process. For me, one of the hardest parts is knowing that despite everything you try, the trial and error process you go through can ultimately put you back in hospital if it’s not quite right. It can be a scary thought. The prospect of having a third operation or a sixth stay in hospital is always there, at the back of my mind. Here are the 10 most common misconceptions about living with a stoma, according to Speight: 1. Swimming is fine Often people believe that having a stoma means you can’t enjoy the same hobbies and activities that you did before you had the operation. Swimming comes to mind first: I think people presume you’ll have a leakage or accident, but in the 10 years I’ve had the stoma. I’ve never once had a problem. The stoma bag is waterproof and secure due to its adhesive. There’s no reason why a person with a stoma can’t swim with confidence. 2. What you can and cannot eat When I first spoke to my stoma nurse, I asked about my dietary requirements and what to avoid... you’d be surprised about what’s on the forbidden list. Some people may be advised to avoid eating very fibrous foods, or foods with tough outer skins such as sweetcorn, popcorn, peas and potato skins, to avoid causing a blockage in the bowel. Often eating out can feel like a game of Russian roulette. I’ve had many episodes where I’ve been caught out and been absolutely floored in the process. 3. Being visible I was 24 when I first had the emergency surgery to have a stoma. At the time, I thought having the operation would mean my career was over... you can’t be a pop star and have a bag, right? In reality, no one actually will know until you tell them. I’ve worn tight-fitting clothes while channelling my best Freddie Mercury moves and it’s never been a problem. I kind of wish I could tell my younger self that things will be ok and it’s not the end. In some ways, it was just the start, because it gave me a whole new lease of life. 4. ‘Only elderly people have stomas’ I originally thought only old people have stomas, and yes, the elderly are more likely to have a stoma, but surgery can be performed on anybody at any age. I’ve met a number of younger people through the charity Crohn’s & Colitis UK who are just like me, and it’s quite comforting to know you’re not alone. 5. Sex Without being too graphic, this isn’t a problem. It’s all about finding the right partner who can make you feel safe and confident. 6. Smell A lot of the misconceptions about having a stoma were things I initially thought too. I thought it would be unhygienic and, quite frankly, not smell so fresh. The reality is, you’ll only ever notice the smell when you go change it in the toilet. In some ways, it would be no different from anyone else using the loo 7. Is this permanent? For some patients, a stoma is permanent. However, for many, an ostomy is performed to allow for the bowel to heal from scarring, inflammation and infection. I personally need to get to a level of health where a reversal could be performed, while also managing to take some time off to heal properly. 8. ‘You can’t exercise’ I think this misconception might be because people might think you’re vulnerable or weak due to the operation. Exercising regularly can have a really positive impact on people with a stoma, as it reduces the risk of a hernia and keeps your body fit. I’ve never felt stronger in my life. 9. Find the nearest toilet I think people often think you’re walking around with poop all day... this isn’t the case! You just have to go to the toilet like everyone else. 10. The reality is... Yes, it’s a life changing operation but with a few mindful changes you can lead a happy and healthy life. Just avoid the popcorn and drink plenty of water. Read More Ninety-five per cent of Black adults don’t swim – meet the people trying to change that How being seduced by gambling’s love bombing ended with a prison sentence ‘Unproblematic people don’t age’ reflects the stupidest kind of beauty standard Woman, 50, to become a surrogate mother for same-sex couple Doctors dismissed her as a hypochondriac. Then came an incurable diagnosis Festival founder hopes to help tackle women’s health taboos
2023-05-19 20:25
Amazon Fire TV Cube (2022) Review
Editors' Note: This is the most recent version of the Amazon Fire TV Cube. Read
2023-06-23 00:24
Android 14 Is Here: 4 Features We're Excited to Try
The headliner at I/O 2023 was Google's Search Generative Experience, a new AI-driven approach to
2023-10-04 23:51
'Botched' Season 8': Plastic surgeon Dr Terry Dubrow removes patient Cherish's misplaced breast implants
Plastic surgeon Dr Terry Dubrow helps Cherish to get her breasts improved
2023-09-08 15:28
Thousands of delivery robots are being deployed for Uber Eats
Your next meal could be hand-delivered by a robot. Food delivery service Uber Eats is
2023-05-31 17:59
The best Dyson Airwrap dupes under $300 — including the Shark FlexStyle
The uncontested reign of the Dyson Airwrap has reached its end. After five years on
2023-05-16 23:24
Riverside Ukraine city left with mud and memories
Zaporizhzhia residents braved grey skies and driving rain to visit the banks of the Dnipro, not to relax in riverside bars and resorts, but to...
2023-06-12 16:55
Apple iPhone 15 vs 13: Comparing prices and specs to help you upgrade
Apple just wrapped up its big Sept. event, which focused on the new iPhone and
2023-09-13 06:23
Winner of 2023 Gerber Baby search is a rainbow baby: ‘Brought us immeasurable joy’
Gerber has announced the winner of its 13th annual Gerber Baby photo contest. On Wednesday (12 July), Madison “Maddie” Mendoza from Colorado was named “spokesbaby” for the American baby food company. Since 1928, the long-standing family brand has been known for its iconic “Gerber Baby” logo. At 10 months old, Maddie enjoys her baby music classes, swimming lessons, and hiking with her parents. Included in her photo submission was a throwback photo of Maddie’s mother, Crystal Mendoza, who bears a striking resemblance to her daughter, floppy ponytail and all. According to Gerber, Maddie is a “rainbow baby” – the name for a child born after a miscarriage, stillbirth, or loss of an infant. “Being a rainbow baby, Maddie has brought us immeasurable joy with every milestone, snuggle, and moment spent with her enriching our lives and making every day more meaningful and beautiful,” said Crystal. “We look forward to witnessing her grow into a kind, compassionate, strong, independent and worldly individual as we hope to be stationed overseas again to teach Maddie about all the different parts of the world.” The baby food company also shared Maddie’s inspiring background, both of her parents being from first-generation families from the Philippines. Crystal, Maddie’s mom, and her father, Jun, were high school sweethearts and have been together for 22 years. Her dad, who graduated from the US Air Force Academy, currently serves as a Lieutenant Colonel physician in the Air Force. While Jun has been serving the Air Force for 16 years, both of Maddie’s grandfathers also served in the US Navy after coming to America with very little. Her parents hope that their family legacy of “resilience and love” continues on with Maddie. “Gerber has always believed in the magic of babies, and Maddie’s story, filled with love, resilience, and adventure, embodies the spirit of generations of Gerber babies,” said Tarun Malkani, Gerber President and CEO, in a statement. “The throwback submission of Maddie and her mom brought a smile to the judges’ faces and perfectly captured the spirit of this year’s program. We’re excited to partner with Maddie and her family throughout the next year to highlight the full-circle journey from baby to parent.” As winner of the 2023 Gerber Baby photo contest, Maddie will be featured on Gerber’s social media channels and marketing campaigns throughout the year. Additionally, Maddie and her family received a $25,000 cash prize, a year’s worth of free Gerber baby food, and a new wardrobe provided by Gerber Childrenswear. According to ABC News, the family was also gifted an ezpz First Foods Set, a $500 Gerber Childrenswear gift card, a Mommy & Me luggage set from Beis Travel, and a Canon EOS R50 camera and lens kit. The company also matched Maddie’s cash prize with a $25,000 donation to charitable organisation March of Dimes, which is committed to ending preventable maternal and infant health risks and death. Read More Man says he was uninvited from pregnant sister’s wedding after criticising ‘ridiculous’ baby names British toddler has American accent after watching Ms Rachel videos: ‘Payback for Peppa Pig’ Pregnant woman sparks debate after repeatedly asking stranger to give her a seat
2023-07-13 06:19
More than 85,000 highchairs are under recall after two dozen reports of falls
Federal regulators say more than 85,000 highchairs sold at major retailers across North America are being recalled due to a fall hazard after a handful of injuries were reported
2023-09-02 02:55
Gift your grad 4K drones with this 2-device bundle, on sale
TL;DR: As of June 9, get the Ninja Dragon Phantom K PRO + Alpha Z
2023-06-09 17:56
Get a refurbished iPad mini 2 for just $107
TL;DR: As of June 18, get a refurbished Apple iPad Mini 2 for only $106.99
2023-06-18 17:47
You Might Like...
Grab the new Apple Watch Magnetic Fast Charger to juice up your new smartwatch
Apple confirms Screen Time bug in Parental Controls
Agricultural producers and food businesses throughout nation getting $320 million boost from USDA
'Quordle' today: Here are the answers and hints for October 25, 2023
Paige Spiranac has Marilyn Monroe's infamous flying skirt moment on windy golf course
Pioneering Anchor Brewing Co. to halt operations after 127 years with beer sales in decline
Adidas brings in $437 million from selling Yeezy shoes that will benefit anti-hate groups
How to unblock BBC iPlayer for free from anywhere in the world
