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Chef whose blood flows backwards says excruciating pain ‘cuts like a knife’
Chef whose blood flows backwards says excruciating pain ‘cuts like a knife’
A single mum whose blood sometimes flows “backwards” has been left in excruciating pain and living “penny to penny” after a CT scan revealed she is likely to have pelvic congestion syndrome – but the next available appointment is not until 2024. Lolita Vaciete, 33, called the NHS in tears and begged them to expedite her treatment but was told she would have to wait a year before she could see a blood specialist about her condition, which is not life-threatening but makes everyday tasks like taking her eight-year-old son Jakob to school a logistical nightmare and means she runs the risk of passing out while on her period. While waiting for her appointment, Lolita, who has worked as a gourmet chef for 15 years, has been prescribed “strong painkillers” to help cope with the agony which she describes as like being “cut with a knife”. She was forced to take sick leave in March as she cannot stand up for more than a few hours at a time, and says the decision to postpone her treatment has “ruined her life” and that if her income continues to dwindle, she will be plunged into debt. Faced with no other option, Lolita is looking to raise money to afford private medical treatment as she fears Jakob is also suffering because of her condition. Pelvic congestion syndrome is a long-term condition where veins in the lower abdomen stop working properly, allowing blood to back up, causing the veins to become congested. Lolita, who lives in Milton Keynes, said: “Taking care of my son is what keeps me going and helps me find the strength to continue doing stuff, even though I can’t physically. “I feel like I’ve been locked in a box and told to just stay and wait. “I don’t understand how it can take 14 months for a blood specialist and gynaecologist to see me.” Lolita did not think it was “serious” when she started feeling pain around her abdomen in June last year. But over the next few months she rapidly lost weight and the pain intensified. “In the past year, I lost two stone without even trying,” she said. “Every time I moved, it felt like someone was cutting me with a knife in the right side of my abdomen. “I was very weak and couldn’t stand up for long without feeling dizzy. “I was constantly going to the toilet, like every half an hour.” In November, Lolita visited Milton Keynes University Hospital after the pain became unbearable and returned for a CT scan a month later which revealed she was likely to be suffering from pelvic congestion syndrome. “The scan showed my blood vessels were dilated,” she said. “They should not be more than 5mm and one of my veins was already 8mm.” She was told a meeting would be scheduled the following month with a blood specialist and gynaecologist to review the scan and confirm her diagnosis, but that never happened. She said: “I received a letter saying somebody will call me in a month’s time to schedule the appointment. “But I didn’t hear anything back, so I called them and received another letter saying my appointment had been delayed.” This went on until last month when Lolita received a letter saying she would not be able to see a gynaecologist until April 2024 and a blood specialist until June 2024. I feel like I've been locked in a box and told to just stay and wait Lolita Vaciete “I called them in tears and said it was urgent, but they could only move the gynaecologist to February 2024,” she said. “I can’t believe that it takes so long to see a gynaecologist.” While Lolita’s condition is not life-threatening, her world has been turned upside down and there is a chance she will have to have her uterus removed. “Whenever I get my periods, I have to stay in bed because I can pass out from losing too much blood,” she said. “If you look at who I was a year ago and who I am now, it has had a huge impact. “Everything I do has to be simplified and my life has become five times slower.” Even simple tasks like taking Jakob to school, a 20-minute walk down the road, have become an ordeal. “I am a single mum and I don’t have any support around me,” she said. “When my blood starts flowing backwards my blood pressure changes quickly, so I can be washing up and then I suddenly need to sit down.” Lolita was working as a fine dining chef until March but was forced to take sick leave as her condition got worse. “I was working full time but I’ve had to stop because I can’t be in a hot environment or standing for long hours,” she said. “I’m on sick leave but I’m getting paid less and less money. “If it continues I think that I will end up getting into debt this summer. “I’m literally living penny to penny to pay my bills.” Lolita says her condition is extremely severe and is also impacting her son who is not accustomed to seeing her so weak and does not fully grasp the situation. “I’m asking because I’m desperate for me and for my son,” she said. “I have noticed that he has been feeling a little down recently and I think it’s because he is used to seeing his mum as a strong woman.” While waiting for treatment, Lolita has been prescribed strong painkillers to help ease the agony. “That’s how they want to fix me, ‘here, take a tablet and carry on’,” she said. But there is nothing she can do to improve her condition other than avoid certain foods like vegetables which thin the blood. “It just feels as though my life isn’t important enough,” she said. Lolita says her GP suggested the backlog may be due to the NHS strikes announced in November. With nowhere else to turn, Lolita has set up a GoFundMe page and has raised more than £500 of her £4,000 target to pay for treatment called vein embolisation. “I looked at going private but the costs are too big, I just can’t afford it,” she said. “I spoke to my friends and they suggested I start a GoFundMe page. “This money will help me get treatment this year, and I will be able to make beautiful memories with my son this year. “My heart is breaking when he doesn’t understand why I am not the same. “I am suffering alone and losing hope.” To find out more about Lolita’s fundraising, visit www.gofundme.com/f/help-end-lolitas-pain. A spokesperson for Milton Keynes University Hospital said: “Ms Vaciete came in via our Same Day Emergency Care unit for urgent same-day assessment. Following triage by a clinician and a CT scan, Ms Vaciete was booked in for a non-urgent routine outpatient appointment. “This is currently scheduled for February 2024 as the next available appointment. “We are constantly reviewing our waiting lists and aim to bring appointments forward where possible, with patients being seen in order of clinical priority. If Ms Vaciete’s symptoms are getting worse, we would advise that she contact her GP.” Read More Gaining weight before 30 raises cancer risk decades later Teacher, 25, rushed to hospital with stomach ache diagnosed with terminal cancer Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live
2023-05-17 15:49
Top UK Rolex Retailer Expects First-Quarter Sales Decline
Top UK Rolex Retailer Expects First-Quarter Sales Decline
Watches of Switzerland Group Plc, the top seller of Rolex timepieces in the UK, expects first quarter sales
2023-05-17 15:27
Loving trainers: JD Sports' profit to top 1 billion pounds
Loving trainers: JD Sports' profit to top 1 billion pounds
By James Davey LONDON (Reuters) -JD Sports Fashion said on Wednesday it expected profit to exceed 1 billion pounds ($1.3
2023-05-17 15:26
At Cannes, independent film firms optimistic as streamers stumble
At Cannes, independent film firms optimistic as streamers stumble
By Miranda Murray CANNES Independent film companies facing a market upended by the entry of streaming services are
2023-05-17 14:46
Gordon Ramsay is going off the beaten track to become a better cook
Gordon Ramsay is going off the beaten track to become a better cook
While we might be most familiar with seeing Gordon Ramsay cooking up a storm in a galley, he says he loves to “get out of the kitchen and get my hands dirty”. That could explain why he’s filmed three series of Gordon Ramsay: Uncharted on National Geographic, giving him the opportunity to explore different experiences and dishes from all over the globe. From snacking on alpaca meat 11,000 feet above sea level in the Peruvian Andes, to eating fish curry in Kerala, south India, Ramsay, 56, has been on a culinary tour of the world. “I always love to get out of the kitchen and get my hands dirty,” he says. “It gives me time to embed into local food communities and get inspired.” In the series, Ramsay switches positions – in many of his previous shows, he’s the teacher, but he’s very much the student in Uncharted. He says this “definitely made me more humble, especially when the locals don’t love my dishes”, but ultimately “experience helps me become a better chef”. Now, the chef is releasing a cookbook-meets-travelogue as an accompaniment to the TV show, with the recipes reflecting the diversity of his travels. Dishes include spicy grilled lobster with coconut and breadfruit from Hawaii, chicken pepper pot from the jungles of Guyana, New Orleans-style BBQ shrimp and spice-rubbed steaks with pele pele sauce from South Africa. We chatted to Ramsay about his approach to travel and food… How important is it to have an open mind when travelling? “Having an open mind really helps you to bed in with the local community. For me, I get to better understand the importance of each dish and ingredient. “It really helped me to craft some of the incredible dishes at our final cooks and now this amazing book. And trust me, I’ve taken all that knowledge and used it in my dishes at my restaurants around the world.” How can adventure help you understand a region’s culture and cuisine better? “If you want to go off the beaten path, you’re not getting on the tube or M5 to get there. You have to have some adventure involved! And as I learned in Peru with the mango tree, some of the best ingredients come from being out of your comfort zone.” Has travel always been a part of your food ethos? “When I was a young chef, I wanted to have all the experience and knowledge to help me be the best. I wasn’t going to places like Laos or Tasmania, but I was travelling and taking in everything I could get from every city I went to. “I may not have been rappelling a cliff or diving while learning in France, but trust me, some of those kitchens were just as intense!” What dish in the book took the most effort to master? “I’d have to say the Pandi curry in India. I’ve made many curries in my time, but this one was truly unique since it used pork. I’ve been to India many times, but never to this region and getting in so in-depth with the local purveyors. “I learned so much from the curry – to the coffee liquor to those spicy pickled vegetables – that said, the biggest challenge for me during that trip had to be getting the ants we used for the ant curry out of my hair!” Did you fail at anything? “Of course I’ve failed. I’ve lost fires, burned protein, disappointed the locals – but I’ve always picked myself up and tweaked and finessed my mistakes. “Mistakes aren’t bad when it comes to cooking, it’s the perfect learning experience. So if you fail with any of the recipes, just learn and adjust and keep trying.” What was the most memorable destination you went to? “That’s so tough, that’s like choosing a favourite child. They were all so unique and beautiful, but I think Tasmania was really memorable to me. The culture of bartering and the incredible seafood really opened my eyes to the incredible bounty that island has.” What’s the biggest lesson you learned from filming Uncharted and writing the cookbook? “Resourcefulness and making sure that we only take what we need. Those principles are very similar to what we are running and doing in restaurants, use what you need, take what you need. And making sure it’s seasonality at its best.” ‘Gordon Ramsay’s Uncharted: A Culinary Adventure With 60 Recipes From Around The Globe’ (published by National Geographic, £25). You can stream all episodes of National Geographic’s ‘Gordon Ramsay: Uncharted’ exclusively on Disney+. Read More Three meat-free dishes to try this National Vegetarian Week How to make TikTok’s viral whole roasted cauliflower What is coronation chicken? The story of the royal recipe and how to make it Healthy lemony smoked salmon pasta that takes zero effort Easy coronation chicken pie recipe chosen by Mary Berry Andi Oliver on turning 60 and channeling her anger into power
2023-05-17 14:18
Singapore Air’s Record Results Leave Rival Cathay in Wake: Chart
Singapore Air’s Record Results Leave Rival Cathay in Wake: Chart
Singapore Airlines Ltd. reported record annual results despite flying at 78% of pre-Covid capacity and carrying almost 10
2023-05-17 13:23
'Mississippi miracle': Kids' reading scores have soared in Deep South states
'Mississippi miracle': Kids' reading scores have soared in Deep South states
Mississippi, Alabama and Louisiana have seen a promising turnaround in their student reading scores after passing a series of similar literacy reforms
2023-05-17 13:18
Australia’s Treasury Wine Sees Long Recovery From China Tariffs
Australia’s Treasury Wine Sees Long Recovery From China Tariffs
Australia’s wine exports to China could take years to recover fully after any easing of steep tariffs, the
2023-05-17 11:18
North Carolina abortion: Lawmakers override governor's veto on 12-week ban
North Carolina abortion: Lawmakers override governor's veto on 12-week ban
Republicans overturn the governor's veto of their bill, prompting chants of "shame" from onlookers.
2023-05-17 09:45
An AI CEO Went to Washington and Asked for Rules: Key Takeaways
An AI CEO Went to Washington and Asked for Rules: Key Takeaways
The Senate’s first major hearing on artificial intelligence covered everything from the lighthearted marvels of generative AI to
2023-05-17 06:15
CANNES PHOTOS: Helen Mirren's blue hair, Johnny Depp's return and more Day 1 scenes
CANNES PHOTOS: Helen Mirren's blue hair, Johnny Depp's return and more Day 1 scenes
CANNES, France (AP) — The Cannes Film Festival opened its 76th edition with a parade of stars, including the much-debated return of Johnny Depp.
2023-05-17 04:28
Disney asks judge to dismiss DeSantis-appointed board's lawsuit in latest tit-for-tat
Disney asks judge to dismiss DeSantis-appointed board's lawsuit in latest tit-for-tat
Disney is asking a state judge to dismiss a lawsuit filed by a governing board appointed by Gov. Ron DeSantis to oversee Disney World
2023-05-17 03:56
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