
What’s Trending Today: Murder Suspect Escapes, Disney/Charter Dispute
Welcome to Social Buzz, a daily column looking at what’s trending on social media platforms. I’m Caitlin Fichtel,
2023-09-01 21:23

Woman bullied over skin blistering disorder writing books to stop other children ‘feeling like freaks’
A woman who was born with a rare inherited skin blistering disorder which caused her to get “bullied” and feel “like a freak” throughout her childhood and teenage years, as well as forcing her onto a soft food diet of “bananas and custard” for weeks at a time, now writes inclusive children’s books with a focus on disability to encourage “other children to grow up with confidence”. Vie Portland, a 52-year-old confidence coach, author and speaker from Winchester, was born with epidermolysis bullosa simplex generalised intermediate but was not formally diagnosed with the skin condition until she was 28. According to the NHS, epidermolysis bullosa (EB) is a rare inherited skin disorder that causes the skin to become very fragile, and any trauma or friction to the skin can cause painful blisters. Vie is yet to find a treatment that helps her condition, and her feet are regularly covered with huge internal blisters which feel like she has “stones under (her) skin.” Her condition even means that she cannot eat “anything acidic or too peppery” and often spends weeks eating “just bananas and custard”. She has also developed thoracic outlet syndrome, chronic bursitis, and often has spasms, because of walking with a limp to try to ease the pain. Now, Vie writes inclusive children’s books to raise awareness about living with a disability, because she grew up “afraid that there was no one else like (her)”, and hopes to write a book about someone with her condition next. Vie told PA Real Life: “So it feels like I’ve got stones under my skin all the time on my feet and it doesn’t matter how much you try to explain that to someone people just don’t get it. “Even things like if I meet friends for a drink in a lovely pub garden – I’ll be in agony because of walking on gravel and it takes so much energy out of me. “I can’t eat anything acidic or too peppery – sometimes I have to eat just bananas and custard for weeks.” Vie was born with the skin condition, saying: “I was born with no skin on my bottom and had some skin missing on my left foot. “The charity that works with people that have EB wasn’t around then – I spoke to someone recently from Debra, the charity, and they said if you looked at all the people on a double-decker bus, you’d expect to find at least one person with psoriasis. “But, you’d have to wait for over 700 buses before you met someone with EB.” As a child, Vie regularly had huge blisters all over her feet and the back of her heels. She explained: “I remember wearing jelly shoes one summer, and heat and friction are two of my triggers. “Throughout the day, blisters grew around the rubber shoes and I had to have the pair of shoes cut off my feet – it was excruciating.” When Vie was a teenager, she was very self-conscious of her condition, she explained: “I was in constant pain, and I struggled with all shoes and walking anywhere. “We’re always told not to pop blisters, but when you have EB they tell you to pop them because they get so big. “I didn’t know that at the time and it was just so painful. “People were noticing how I walk and I was embarrassed to show my feet – I didn’t have a normal childhood because of this. “Even something as simple as opening a bottle makes several layers of skin come off and cause me to have raw skin all over my hands, I was told this was weird by other people.” Doctors were baffled by Vie’s condition, over the years, she was told she had different types of eczema and even that she was allergic to her own sweat. But, at age 28, she was diagnosed with EB by a dermatologist in London. She said: “I just grew up believing that it was my fault and I was afraid that there was no one else like me.” “It all just made sense. “They even took pictures of my feet for a medical journal because it was so rare.” After getting her diagnosis, Vie began researching the charity DEBRA, which specialises in EB. She said: “I started finding out that there were people like me – it was amazing, growing up, I was bullied and felt like a freak.” Since then, Vie has sadly not been able to find a treatment that helps her condition. “There’s no cure for EB but things have moved on a lot over the past 20 years,” she said. “We have special types of dressings and creams which can help alleviate the pain.” On top of this, because Vie has been walking “unusually” for most of her life, she has developed thoracic outlet syndrome, chronic bursitis, and often has spasms. Vie said: “It can be frustrating at times because it just feels like no one will ever understand what it is like. “For most people, blisters are a bit painful, but it’s all right, but for me, it’s one of the worst pains in the world.” Now, Vie is focussing on raising awareness about living with a disability, and has recently written two inclusive children’s books called ‘Where Are We Going?’ and ‘Who Am I?’. She said: “I want other children to grow up with confidence and not to feel like a freak like me. “Children aren’t born with prejudice and I think it’s really important to teach them about all of our amazing cultures and worlds. “In my books, I don’t explicitly say the character is disabled until the discussion questions at the end – I want the character to be accepted and not defined by their disability. “I think people have more in common with each other than things that are different, and that’s a beautiful thing. “I’m hoping to write a book about someone with my condition – that’s my next plan.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Fraser Franks undergoing heart surgery – four years after ‘hidden’ condition cut short football career 4 viral TikTok make-up trends you’ll actually want to try Childhood Cancer Awareness Month: What are the warning signs that your child might have cancer?
2023-09-01 21:15

Scientists believe they have found a cure for alcoholism
Alcohol addiction ruins millions of lives every year, but scientists may have found a cure for this terrible affliction. A new treatment for alcohol use disorder (AUD) has been trialled in monkeys with impressive results and, if these translate to human trials, the impact could be monumental. A team of neuroscientists and physiologists from across the US tested a new type of gene therapy to see if they could directly target the underlying brain circuitry associated with sustained heavy drinking. As they noted, in the journal Nature Medicine, people suffering from AUD commonly return to alcohol use even if they attempt to quit. This is largely to do with what’s known as mesolimbic dopamine (DA) signalling – meaning how the central nervous system circuit communicates the feelgood neurotransmitter dopamine. A protein called glial-derived neurotrophic factor (GDNF) is key to keeping these neurons in this reward circuitry functioning. However, experts have found that levels of GDNF are reduced in people with AUD during periods of alcohol abstinence, most notably in a region of the brain called the ventral tegmental area (VTA), as IFLScience notes. Therefore, the researchers decided to test whether using gene therapy to deliver more GDNF to the VTA could help reinforce this crucial dopaminergic signalling and prevent patients from suffering an alcoholic relapse. The team of scientists explained how alcohol consumption in non-addicts prompts the release of dopamine, creating a pleasurable buzz feeling, but chronic alcohol use causes the brain to adapt and stop releasing so much dopamine. “So when people are addicted to alcohol, they don’t really feel more pleasure in drinking,” Dr Kathleen Grant, a senior co-author of the study, said in a statement. “It seems that they’re drinking more because they feel a need to maintain an intoxicated state.” For their research, Dr Grant and her colleagues used eight rhesus macaque monkeys, who were exposed to increasing concentrations of alcohol over four 30-day “induction” periods. The monkeys then had free access to alcohol and water for 21 hours a day for six months, during which they developed heavy drinking behaviours. This was then followed by a 12-week abstinence phase, with the GDNF treatment performed four weeks in for half of the subjects. The gene therapy was delivered using a a viral vector containing a copy of the human GDNF gene injected directly into the primate’s VTA, according to IFLScience. And the results were truly jaw-dropping. “Drinking went down to almost zero,” Dr Grant said. “For months on end, these animals would choose to drink water and just avoid drinking alcohol altogether. They decreased their drinking to the point that it was so low we didn’t record a blood-alcohol level.” The most exciting aspect of their findings is the suggestion that gene therapy could offer a permanent solution for people with the most severe cases of AUD. This will be a welcome glimmer of hope to many, given that some 29.5 million people were diagnosed with AUD in the US alone in 2021, according to the National Institute on Alcohol Abuse and Alcoholism. Of these 29.5 million sufferers, almost a million (894,000) were aged between 12 and 17. It’ll likely be some time before we know for sure whether the gene therapy can be rolled out in humans, but it’s an important first step in tackling this devastating disorder. Sign up for our free Indy100 weekly newsletter Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.
2023-09-01 20:57

Rising tensions between employers and employees have put the labor back in this year's Labor Day
Labor Day is right around the corner
2023-09-01 20:55

Tesla’s $41,000 Model X Discount Unlocks Subsidies Musk Wanted Gone
Tesla Inc.’s latest discounts will newly qualify one of its models for federal subsidies that Elon Musk said
2023-09-01 20:24

Panasonic Is Testing 'Power-Generating Glass' Panels for Buildings
Panasonic is testing "power-generating glass" which it expects to start selling by 2028 for use
2023-09-01 20:22

Fraser Franks undergoing heart surgery – four years after ‘hidden’ condition cut short football career
Former Newport defender Fraser Franks faced a difficult “grieving process” when a heart problem cut short his football career at age 28. But four years on, as he prepares for surgery that will ultimately save his life, he is “grateful” the condition was picked up early – as many people aren’t even aware they’re at risk. “I’ll be having a mechanical valve fitted and work done on my aorta,” Franks, now 32, told PA Media. His surgery is set for September 4. “It is a big operation and I’ll be in hospital for about 10 days. And the recovery after, I won’t be able to lift anything, even a bag of shopping, for two to three months. With a four-year-old daughter, that’s going to be difficult for me and her,” added Franks, who shares daughter Nellie with his wife, former S Club 8 singer Stacey McClean. “It’s been a lot to get my head around. There will be certain things I can’t do afterwards and a lot of lifestyle adjustments, but I’m really happy and content with it. I’m grateful that this has been found and that there’s a solution for me, where unfortunately a lot of people haven’t got that. “I’ve had conversations with cardiologists and surgeons [who’ve said] this is going to save my life, I probably wouldn’t live much longer with the heart I’ve currently got. So I’m really grateful for that, and it’s only through playing for a professional football club that this was picked up.” Franks was born with a bicuspid valve – meaning his aortic valve, which helps control blood flow in the heart, had two cusps (flaps) instead of the usual three. The condition is believed to affect around one in every 100 people, but it often doesn’t cause symptoms and only becomes serious if the valve begins to leak or develops severe narrowing (aortic stenosis), which is what has happened in Franks’ case. A routine medical at 16 first picked up the defect. Franks, who signed with Chelsea at age eight, had always been fit and healthy, but when he signed with Brentford at 16, like all players joining pro clubs he was given a heart scan. Further investigations revealed the bicuspid valve, but because it wasn’t causing problems, he was given the green light to continue as normal. Franks carried on, trying not to give it too much thought – until at 28, he suddenly started feeling unwell after a game and was rushed to hospital the next day, worried he was having a heart attack. “I wasn’t having a heart attack or anything like that, but I contracted an infection. While I was in there though, I told them I’d had this heart issue when I was 16, so they scanned me and saw the condition had worsened,” he recalled. “I’d developed aortic stenosis and the valve was leaking a lot more. Then it was deemed unsafe for me to carry on playing football, so I had to stop playing there and then.” London-born Franks has teamed up with the British Heart Foundation for their September Spotlight campaign, which aims to shine a spotlight on hidden heart conditions. His story highlights how heart problems can potentially affect anyone – including those who are young and seemingly very fit and healthy. Even when symptoms are mild or barely noticeable, undetected issues could become serious and even life-threatening, which is why research and awareness are so vital. Plus, as Franks has experienced, there are complex layers and emotional challenges to living with a hidden heart condition too. Being forced to suddenly retire early when he’d previously felt fine – and still looked well on the outside – was tough. “Ever since age eight, I’d been known as ‘the footballer’. It had been my whole identity, so to retire at 28 out of the blue was difficult,” Franks explained. “I think I kidded myself in the first six months, where I was saying, ‘Yeah I’m fine, I’m enjoying retirement and all that good stuff’. But I was really struggling and drinking heavily. “I reached out and got some help and had to do a lot of therapy. It really is a grieving process, and I had to figure out who I was and what I enjoyed away from being ‘the athlete’. “And I didn’t play at the top level, so I didn’t have savings in the bank – I had to pretty much get to work straight away and earn a living. My wife was heavily pregnant then too, so there was a lot of stress and overwhelm at that period.” Yoga and meditation also proved a huge help in coming to terms with everything, and Franks has since found a new sense of purpose, channelling his experiences into helping others. “I do a lot of work around addiction and alcohol now, because I really struggled with those things. That’s become a big part of what I do now, helping people who want to transition away from sport, and working with young athletes on addiction and mental health.” He took up yoga as a gentle form of exercise when doctors told him strenuous sport was too risky. “I just completely fell in love with it,” Franks added. “I’ve found a real passion for it. It’s actually a goal of mine now – it’s going to be something I’ll be thinking about when I’m in hospital – when I’m healed, I want to go to India or Bali and actually earn a qualification and get trained as a yoga teacher. “Instead of focusing on all the things I’m unable to do, that’s something I will be able to do. That brings me a lot of comfort.” This September, the BHF is shining a spotlight on hidden heart conditions and urging everyone to get involved by supporting the charity however they can, with stories, stuff, time or money. Visit spotlighton.bhf.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live 4 viral TikTok make-up trends you’ll actually want to try Childhood Cancer Awareness Month: What are the warning signs that your child might have cancer? How students heading to university can save some cash and budget wisely
2023-09-01 20:19

Rising tensions between employers and employees has put the labor back in this year's Labor Day
Labor Day is right around the corner
2023-09-01 19:29

David Bowie’s fashion daughter Lexi declares art has helped her out of ‘dark places’
After the singer’s cancer death in 2016,David Bowie’s fashion designer daughter Alexandria Zahra Jones has says making art helped her battle mental health issues.
2023-09-01 19:27

The hottest new UK hotels that opened this summer
Although it’s almost back-to-school time, it’s not too late to take advantage of the swathe of new hotels that have thrown open their doors this summer. Treating yourself to a smart domestic overnight somewhere fresh is the ultimate indulgence, and there’s plenty of choice when it comes to swanky stays. How about a 17th-century inn in Somerset, given a major facelift courtesy of a chef and gallerist team? Or a quirky new-kid-on-the-block in Northumberland with Alice in Wonderland-inspired interiors? Elsewhere, there’s a new city break option in Liverpool, where former council offices have been transformed into swish digs, while the storied Grade II-listed Bromley Old Town Hall has unveiled its next iteration as a co-working space, restaurant and design-led hotel. And in the Lake District, a much-loved Cumbrian inn near Ullswater has been given the full VIP treatment after being gutted by a fire, reopening to much fanfare and featuring achingly stylish rooms. Here’s our pick of the coolest new openings to inspire your next night away. Read more on UK travel: Best spa hotels in London: Where to stay to chill out in style The best UK holiday destinations for families Best affordable hotels in Cornwall The Tempus at Charlton Hall Estate, Northumberland While visitors to Northumberland are spoilt for choice when it comes to smart self-catering digs, there aren’t heaps of boutique hotels to choose from. So, hurrah for more-is-more wedding venue Charlton Hall Estate which has added a 15-room boutique number, The Tempus, to the grounds. The mood is full-throttle exuberance, with light-hearted decor by Jeffreys Interiors that loosely riffs on Alice in Wonderland. In the bar a canopy of crimson leaves hangs above turquoise booth seating, lined by found-on-the-estate branches, bathed in glittery, disco ball light. The adjoining restaurant, reached by passing under antique Indian arches, is all sorbet shades and rattan lampshades; it’s cool enough to attract a cocktail-quaffing crowd, and pretty enough to bring your granny for a Sunday roast. The menu spans classics – fish and chips, burgers and Shepherd’s pie – through moreish arancini with curry mayo, and girolle mushroom gnocchi. Bedrooms each have talking-point design, with palettes ranging from sage and coral through crimson and ochre, wallpapers depicting cranes streaking through jungle scenes, and riotously fun furniture, from leopard-print scallop-backed to monochrome-hooded Porters chairs. As for exploring, Alnwick Castle and gardens are 10 minutes’ drive, and Seahouses – for boat trips around the Farne Islands – is about a half an hour by car. Here, Serenity Farne Island Boat Tours, which scooped Gold in the 2023 Experience of the Year at the VisitEngland Awards for Excellence, provide fascinating commentary to accompany jaw-dropping wildlife, including chunky grey seals and puffin colonies. Rooms from £232, B&B; Charltonhall.co.uk The Three Horseshoes, Batcombe, Somerset In recent years, the opening of Hauser & Wirth and country house charmer The Newt – and its glorious gardens – have led south Somerset to gain a reputation as the Notting Hill of the West Country. Now, acclaimed chef Margot Henderson (of Rochelle Canteen fame) and gallerist Max Wigram have breathed new life into an 17th-century inn in Batcombe – 15 minutes from Bruton – adding further magnetism. It’s easy to see why Henderson (who has friends living nearby) fell in love with the area. Batcombe is all vintage chocolate box scenery, with a gargoyle-adorned 15th-century church, sweeps of stone cottages by riverside paths where wildflowers grow, and light that dances like a golden sprite across the surrounding hills. Just next to the church, kids scramble barefoot along salvia and rose-lined paths in The Three Horseshoes’ revamped garden, as punters sip smooth Psychopomp WÅden Gin on its parasol-lined sun terrace. Inside, the pared-back dining space has newly exposed flagstone flooring, wooden Georgian furniture, an inglenook fireplace and art from Wigram’s collection. Food – whipped up by head chef Nye Smith (Henderson is in the kitchen two to three days a week) – is earthy and unpretentious; think Porthilly Rock oysters, globe artichoke with tangy vinaigrette, homely aubergine parmigiana finished with made-down-the-road Westcombe Cheddar and rabbit pie served by staff who brim with enthusiasm. Breakfasts are a pleasing spread featuring poached eggs, roasted tomatoes, yoghurt with apricots and local apple juice. Five bedrooms upstairs, designed by Frances Penn, feature comfy beds topped with Tile linens and cream Piglet in Bed throws, bamboo-framed hummingbird prints, stout antique furnishings – sourced from the likes of Somerset-based Ralfes Yard – traditional armchairs and tree trunk slice tables. Contemporary-feel white terracotta-tiled bathrooms – with walk-in showers or deep bathtubs – are stocked with Wildsmith toiletries. Rooms from £220, B&B; Threehorseshoes.co.uk George and Dragon, Lake District Also set to make a comeback, this time over in the Lake District, is the George and Dragon near Penrith – not far from picturesque Ullswater. Owned by the Lowther family, and part of the Askham Collection, which includes swish Askham Hall, this much-loved Cumbrian inn has been closed for a year after a fire gutted the property. Now completely refurbished, it’s back and looking better than ever. Ten stylish bedrooms, designed by Totty Lowther – who has a background in textile design – feature the likes of paisley-patterned wallpaper and tulip prints alongside antique furniture and artwork from the family’s collection. Bramley toiletries and coffee and tea from Farrers in Kendal ramp up the luxe level, and – handily for those travelling with a pooch in tow – all rooms are dog-friendly, and staff go above and beyond to make them welcome (they even get their own welcome pack with treats and a suggested list of local rambles). Another highlight is the back-in-swing kitchen restaurant, where the wine list champions bottles sourced from small, family-run vineyards and a field-to-fork approach sees foraged and locally grown produce take centrestage in head chef Gareth Webster’s ricotta and wild garlic agnolotti, market fish with samphire, Lowther Estate ‘deer in blankets’ with fermented rhubarb ketchup, and fruity crumbles. Rooms from £150, B&B; Georgeanddragon.co.uk The Barnsdale, Rutland For their third act, hitmakers The Signet Collection – behind The Mitre and The Retreat at Elcot Park – have turned their attention to the Midlands, making over Oakham’s Barnsdale Lodge. With a new name, The Barnsdale, interior design delivers the playful, classy elegance Signet have become known for, but feels a little more restrained and grown up than in previous properties, perhaps to ensure appeal to the regulars – walking groups, fishing enthusiasts and birders – who’ve been coming here for donkey’s years. In The Rod Room, vintage fishing rods and reels decorate the walls – in homage to nearby Rutland Water’s brown trout – and diners settle in to orange banquettes and gentle fern-toned chairs to enjoy the likes of Ronnie Kimbugwe’s cult cauliflower with sticky teriyaki, and stuffed chocolate bombolini. A flagstone-floored Orangery looks out to a rambling rose-draped courtyard, with Whispering Angel cabin. Smart-as-a-pin staff are on hand to give the welly-and-walks crowd route tips, and offer menu recommendations in the celebratory-feel 1760 restaurant – where bursting-with-flavour tomato gazpacho, lamb rump with harissa yoghurt, beetroot carpaccio and pesto tagliatelle are served. Bedrooms are reassuringly stylish, bringing together appealing colour-pop palettes, frill-edged headboards, bespoke Bramley toiletries and complimentary decanters of King’s Ginger. Stripey-walled family rooms have cute bunk beds for little ones, while the Fort Henry Suite has a copper bathtub, robin-run-the-hedge adorned wallpaper, and canopied bed. Days can be spent playing leisurely rounds of croquet on the lawn, or whizzing around Rutland Water by ebike (the hotel will soon have a fleet), stopping off at Rutland Nature Reserve for a rare bird fix at the renowned Rutland Osprey Project. Plus, later this year, the property will open a spa, with indoor-outdoor swimming pool. The Municipal Hotel Liverpool - MGallery, Liverpool Cast eyes to Liverpool, and there’s another hotel crossing heritage good looks with a fresh identity to discover. The former council offices on Dale Street have been reimagined to the tune of £60m into a 179-room hotel by big-hitting brand MGallery. Retaining its sandstone bones and iconic clock tower – a skyline stalwart which is as recognisable as Radio City Tower and the Liver Birds – the property’s light-filled Palm Court Bar is already proving popular. With gleaming pillars, palm trees, jewel-hued chairs and mixologists shaking up tea-infused cocktails, it’s added a touch of Gatsby to the city centre. For a more genteel afternoon tea experience there’s the Botanical Tea Room, while meat-and-seafood-heavy Seaforth restaurant has dishes which riff on the city’s historic trading connections with land and sea: roasted wild salmon with mussel broth and surf’n’turf, alongside cauliflower beignets and truffle chips. Parquetry-panelled corridors and original staircases lead to 179 bedrooms (nine of which are accessible) with padded William Morris & Co floral headboards, retro phones and midnight blue-tiled bathrooms with rainforest showers. Guests can access a restful 16m pool, salt sauna, steam room, laconium, experience shower and petite gym for a £30 fee, and book relaxing therapies by Elemis and Grown Alchemist. Brama, Bromley Grade II-listed Bromley Old Town Hall has had quite the history – playing host to David Bowie’s nuptials in days gone by – and its latest incarnation has seen it transformed into a mixed-use co-working space, restaurant and design-led 23 bedroom hotel. Brama has the feel of a convenient aparthotel and will appeal to business travellers after a fuss-free and comfortable stay. Although there are staff on site, contactless check in via a key code is possible for guests who want to keep themselves to themselves. Art Deco-inspired bedrooms are a thing of beauty, with geometric mirrors, ultra comfy Hypnos beds dressed with snuggly coral throws, and apple-coloured flared panel headboards, which match the bold green tiling in Bramley-stocked shower rooms. For those working late, in-room caffeine hits come courtesy of carbon-negative roasters Kiss the Hippo. Breakfasts can be taken downstairs in Dorothy & Marshall restaurant (other than on Mondays when there’s a grab and go option), where Brit fare is served in the grand surrounds of the former courthouse, which has picture gallery walls, arched windows and wood-panelling aplenty. Come lunch and supper time, a concise Brit-fare menu includes the likes of roasted cauliflower steak, artichoke puff pastry tart, fish’n’chips and burgers followed by trad favourites jam roll poly or treacle tart. Location-wise, Bromley’s High Street is on the doorstep, and its train stations are an easy walk. The hotel is a quick bus ride to Beckenham Place Park for leafy strolls, stone baked pizza and halloumi wraps from the Homestead Cafe, and bookable dips in the park’s swimming pond. Read more of our best UK hotel reviews Read More Best UK hotels 2022 Best luxury hotels in Scotland for 2022 Family-friendly hotels in the UK for style, location and value 8 of the best boutique hotels in The Cotswolds for a charming break The Landmark London review Why you should swerve the airport and set sail for Northern Ireland instead
2023-09-01 19:21

K-pop star Hongjoong creates 'hard and tough' stage character using clothes and bling
K-pop idol Hongjoong says fashion plays such a big role when he's performing on stage with Ateez it contributes to his “tough and elegant” stage alter-ego.
2023-09-01 18:50

NFTs, Once Hyped as the Next Big Thing, Now Face ‘Worst Moment’
NFTs first crossed Daniel Maegaard’s radar in 2018. He started investing in the tokens in 2019 and by
2023-09-01 18:46