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How To Harness The Power Of This Year’s Summer Solstice
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The Best PC Racing Games for 2023
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‘Suddenly, I saw Dad again’: The radical technology helping those living with dementia
There is a scene in the 2020 film The Father, starring Anthony Hopkins and Olivia Colman, that is all too familiar for people caring for someone with dementia. In it, Hopkins’ character Anthony struggles to keep up with his daughter Anne’s (Colman) movements. One moment, she is bringing home dinner. The next, she is talking about moving to Paris with a boyfriend he doesn’t like. She’s in his flat. Suddenly, he’s in her flat. Her face shifts – she looks like someone he used to know, then a total stranger. Where is he? When is he? Dementia is a cruel sickness that radiates outwards, seeping into the lives of anyone in its orbit. Patients become lost in a maze of memories. The present day becomes too slippery to hold on to, so many retreat into themselves. Wayfinding – meaning the ability to find one’s way in the world – becomes severely impaired, resulting in anxiety, confusion, and distress that can be very difficult for families and carers to cope with. There is no cure for dementia, and most medical research is focused on finding treatments for diseases that cause dementia, such as Alzheimer’s disease and dementia with Lewy bodies. It’s extremely important work, but there’s also a need for tools that can help those living with dementia as well as their families and carers. As research shows that visual cues can help deliver much-needed aid and relief, a number of small creative companies are stepping in to fill in the gap. Sarah Harrison is the founder of Recognii, the world’s first entertainment DVD made especially for people with moderate to later-stage dementia. The idea for Recognii came about after Harrison began taking care of her father when he was diagnosed with Alzheimer’s in 2015. She and her mother, a former nurse, opted to care for him in their family home in Harrogate, where Sarah also resides. “As the condition progressed, he became very withdrawn,” she recalls. “He couldn’t watch TV or engage himself in his own activities, couldn’t really have a conversation, couldn’t read books anymore because he couldn’t follow the plot.” But amid all the gloom cast by the disease, there’d be breakthrough moments when Sarah saw her father as she always knew him. These moments often came when he watched children’s TV, as the faces of smiling, happy children and brightly coloured graphics grabbed his attention. “It was great, but it was also too childish and didn’t reflect his life,” Sarah says. “I thought, surely there must be something out there that is more simplistic viewing that does reflect adult experiences – but there was absolutely nothing.” An idea began to form. Sarah thought that if she could create engaging short clips of “gentle, joyful stuff” with no storylines, it would bring him some relief from the fog in his mind. “He responded to very bright colours and contrasts, and two-dimensional images, which reflected what we know about the way dementia impacts cognitive and visual processing.” Changes in visual perception occur when the sensory journey between the brain and organs (such as the eyes and ears) gets interrupted, or slows down due to dementia. According to Alzheimer’s UK, the disease can also lead to damage to the eyes or parts of the brain, which can then lead to misperceptions, misidentifications, hallucinations, delusions and time-shifting. Like Anthony’s experience in The Father, time becomes an amorphous thing, which jumps back and forth instead of moving in a linear fashion. As such, older memories can become safer places for dementia patients to revisit. I noticed the iPad gathering dust. She said it wasn’t easy for her to use and she missed getting letters and postcards like she did in the past Famileo, a company that creates “family newspapers” for elderly people – many with dementia – works with families of patients to create personalised hard-copy newspapers that utilise “reminiscence therapy” to help soothe and comfort. “Typically, people with dementia are more likely to remember long-term memories,” explains Tanguy De Gelis, a co-founder of the company. “Famileo includes old photographs of themselves and the family, which stimulates their memory and helps them remember people as they were.” Each photograph included in the newspapers is accompanied by text that helps provide context, so that the reader can easily identify who they’re looking at, as well as their own place in the family in relation to the people in the picture. “Managers and activity coordinators at care homes often tell us that a person’s dementia journey is not linear, that symptoms come and go,” De Gelis continues. “The consistency and reliability of these personalised newspapers allows it to be appreciated even more on the ‘good days’ patients have. It can be very hard for family members to think of things to talk about with an older relative, but the newspaper can be a conversation starter and provide a visual guide for both sides.” Having a physical newspaper is also a boon for many elderly people who struggle with smartphones, tablets and laptops. For De Gelis, it was his grandmother who inspired the idea for Famileo. “I bought my grandma an iPad as a Christmas present so she could keep in touch with the family through our WhatsApp group,” he recalls. “But one day I went to visit her and I noticed the iPad gathering dust. She said it wasn’t easy for her to use and she missed getting letters and postcards like she did in the past.” The slow pace in developing tools for coping with dementia is down to a lack of understanding about the disease, says Dr Emilia Molimpakis, CEO and co-founder of Thymia. For years, patients languished in care homes, their minds deteriorating as families watched on helplessly. “Unfortunately, up until recently, pinpointing clear signs of Alzheimer’s disease relied on invasive and/or expensive medical tests and these often don’t show clear results until the disease has progressed substantially.” But recent developments in medical treatments and in the field of artificial intelligence (AI) have shifted things. Dr Molimpakis’ platform involves building AI-powered tools to improve the speed, accuracy and objectivity of dementia diagnoses. Thymia also uses video game-style activities to test for symptoms of cognitive disorders, she says, such as major depression, anxiety and dementia. “Each game is built around one or more cognitive tests, the results of which show tell-tale signs of symptoms, such as fatigue issues, memory impairment, concentration difficulties and more,” she explains. It does so by using software that analyses “biomarkers” of disease while players complete the activities across three key data streams: voice, video and behavioural measures. By analysing how someone speaks or what facial micro-expressions they make, Thymia’s work-in-progress models have identified symptoms in major depressive disorders with more than 90 per cent accuracy, Dr Molimpakis says. Major improvements in healthcare mean that people are living longer – but in a cruel twist of fate, this means that dementia is becoming ever more prevalent. There are currently more than 55 million people living with dementia globally, and according to Alzheimer’s Disease International, this figure is expected to balloon to 78 million in 2030 and 139 million in 2050. While scientists are working on earlier diagnosis and treatment, the need for coping mechanisms for living with the disease is growing. Harrison remembers how her father would react when she showed him the clips she created. He passed away before the final version of Recognii’s DVD could be launched. “It’s like the clouds would part, just for a few seconds,” she recalls. “Suddenly, I saw Dad again. The moments when you get a glimpse of who they used to be are so precious, because as the disease progresses, you do feel like you are losing them. So having made something that helps bring them back, even temporarily – it’s like a gift.” Read More A One Direction fan claimed she had a brain tumour. Five years after her death, we still need answers ‘Death acceptance brings peace’: Are death doulas the cure for our fear of the end? ‘You always feel like you’ve done something wrong’: Why UK surrogacy laws need a ‘real overhaul’ Jason Manford comforted by fans after announcing death of family member Grandmother praised for refusing to babysit daughter’s newborn for free 7 tips and tricks for hay fever relief
2023-05-22 14:22
Mick Jagger, father of eight, explains why parenting is ‘not like riding a bike’
Father of eight Mick Jagger has shared some of the lessons he’s learned about parenting. The 80-year-old singer addressed how his approach to fatherhood has changed over the years during a recent interview with The Guardian. His eight children range from ages 52 to six years old, as he welcomed his youngest son, Deveraux, with his current girlfriend, Melanie Hamrick, in 2016. Speaking to The Guardian, Jagger confessed that even when he welcomed his eighth child, he still had a bit to learn about fatherhood. “You get a bit out of practice – it’s not like riding a bike,” he said. “The more children you have, the more laissez-faire you get about them, to be honest. And it depends on the child.” The Rolling Stones frontman reflected on how he’s enjoyed seeing his children develop new passions as they’ve grown up. However, he also acknowledged that there were a few moments in his children’s lives that he missed out on due to his busy career. “They have their own personalities and you can mould them to a certain extent, but you see their likes and dislikes and encourage them to do things they gravitate towards,” he said. “It’s fun to have children, at any age. But if you’re working and always away, you don’t get to enjoy it quite as much.” Jagger also explained why his approach to parenting is different with his youngest son, in comparison to his other children. “I wasn’t working so much, so I was able to spend more time. And then we had the lockdown – he’s only six, and two of those years I did almost nothing [with the band],” he said. In addition to Deveraux, Jagger has seven children from previous relationships. In 1970, Jagger welcomed his first child, Karis, 52, with actor Marsha Hunt. The next year, his ex-wife Bianca Jagger gave birth to their daughter Jade, 51. He shares daughters Elizabeth, 39, and Georgia May, 31, and sons James, 38, and Gabriel, 25, with actor Jerry Hall. In 1999, he and model Luciana Gimenez Morad welcomed their son Lucas, 24. This isn’t the first time that Jagger has spoken candidly about his family. Last month, he hinted that the Rolling Stones’ post-1971 catalogue would be donated to charity rather than sold for a profit to his children. “The children don’t need $500m [£412m] to live well. Come on,” Jagger told The Wall Street Journal. “You may do some good in the world,” the “Old Habits Die Hard” singer added, suggesting that the catalogue may end up going to charity. Earlier this year, his partner opened up about raising their six-year-old in the midst of her busy schedule. After debuting her first novel, titled First Position, Hamrick described some of the “magical” trips she’s taken with her partner and son, including a safari in Botswana and South Africa. She told The Times in June: “Mick had been joking with me, ‘We’re going camping.’ I was like, ‘I don’t want to go camping. I’m not a camper.’ We got there and I was like, ‘This isn’t camping.’” She described how her family prefers to live at different residences at a time, before acknowledging how important travelling is to her and Jagger. “Just full nomad. We want to travel as long as we can until school gets us,” she said. The former dancer also noted that her child has a tutor who travels with them, as the six-year-old is enrolled in a school in Los Angeles and “goes [to school] a little bit when we’re in France”. Read More Should we stop putting the clocks back? What the experts think Like Rebecca Adlington, I also lost my baby at 20 weeks As Rebecca Adlington shares heart-breaking miscarriage news: How to support others experiencing baby loss
2023-10-25 05:15
'Humanist Vampire Seeking Consenting Suicidal Person' review: A horror-comedy with bite and heart
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